BRCA Umbrella - The BRCA Gene and You

Latest Activity

Bel posted a discussion
5 hours ago
Bel replied to Alice Sullivan's discussion mastectomy and reconstruction in London
5 hours ago
Lisa replied to Lisa's discussion BSO planned for 21st September.
yesterday
Laura Beattie updated their profile
Wednesday
Tanja replied to Tanja's discussion Exercise after surgery and during chemo
Tuesday
Lisa replied to Lisa's discussion BSO planned for 21st September.
Monday
Lisa France (Glasgow Co-ord) replied to Lisa's discussion BSO planned for 21st September.
Monday
nina bromilow replied to Lisa's discussion BSO planned for 21st September.
Sep 17
Lisa posted a discussion
Sep 17
Caroline shelton posted a discussion
Sep 16
Monika replied to Tanja's discussion Exercise after surgery and during chemo
Sep 12
Katie Whitehead replied to Esther R's discussion New member - any teardrop implant or TUG flap information really needed please.
Sep 12
Esther R posted a discussion
Sep 12
Esther R joined BRCA Umbrella's group
Sep 12
Esther R joined BRCA Umbrella's group
Sep 12
Lisa France (Glasgow Co-ord) posted a status
"Meet up date confirmed under Edinburgh Ensemble and Glasgow Get togethers. Please spread the word for our local Scottish members."
Sep 11
Lisa France (Glasgow Co-ord) commented on Caroline (Network Administrator)'s group Edinburgh Ensemble
Sep 11
Esther R updated their profile
Sep 11
Laura replied to Laura's discussion Experience of pbm when small chested in the group Implant Group
Sep 10
Jill Mueller (Admin) left a comment for Esther R
Sep 10
 

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If you wish to contact BRCA Umbrella for media/other enquiries, please email caroline.presho@brcaumbrella.org.uk

Reconstruction Photos can be found HERE

A useful factfile full of abbreviations and jargon-busting definitions can be found HERE

Forum

Has anyone well into their 40s NOT had ovaries removed yet?

Started by Bel in Surveillance Screening or Surgery? 5 hours ago. 0 Replies

Hello,I'm new to this forum: had Triple neg BC in 2002 aged 31, and only years later, after  I was in remission, found out I carry the BRCA1 mutation. I'm having my breast op in December. But, despite being in my mid 40s, I am still extremely…Continue

mastectomy and reconstruction in London

Started by Alice Sullivan in Preventative Surgery. Last reply by Bel 5 hours ago. 2 Replies

Today hasn't been a great day, so I thought I'd finally come on here and ask for some advice.I'm 42 and was diagnosed as BRCA2 in February. I've made the decision to go ahead with the mastectomy and reconstruction. I had an appointment booked in to…Continue

BSO planned for 21st September.

Started by Lisa in Preventative Surgery. Last reply by Lisa yesterday. 4 Replies

Hi,Im looking for some advice please. My BSO is on Wednesday and I'm getting my ovaries and Fallopian tubes removed. My mum had Fallopian tube cancer 7 years ago and after her recovery I got tested and came back brca2+. I haven't decided whether to…Continue

Exercise after surgery and during chemo

Started by Tanja in I need advice, have a question, can you help?. Last reply by Tanja on Tuesday. 3 Replies

Hi, have been amazed by all the stories of courage on this website by all us the carry the BRCA gene and how we are not letting it get the better of us!I wanted to ask others about their experience of exercise.I had a double mastectomy and…Continue

Tags: chemo, health, exercise, gene, BRCA

Diep surgeons

Started by Caroline shelton in Preventative Surgery Sep 16. 0 Replies

Hi, had anybody had Diep surgery at Leeds by Chris Fenn?I've got my first appointment with him in October and would be really grateful if anybody could share their experiences.ThanksCaroline xContinue

New member - any teardrop implant or TUG flap information really needed please.

Started by Esther R in I need advice, have a question, can you help?. Last reply by Katie Whitehead Sep 12. 1 Reply

Hi all,I'm due for surgery in a few weeks but have not decided between implants or TUG flap. I'm currently a 30FF and have been told that teardrop implants of around 500cc would leave me looking naturaI and about a D cup however a TUG flap will…Continue

Triple Negative Breast Cancer, BRCA1+ and HRT?

Started by Emma Lane in I need advice, have a question, can you help?. Last reply by Juliet Sep 4. 2 Replies

Hi there! The story so far....10 years ago at the end of this month I was diagnosed with Triple Negative Breast Cancer aged 28. I had a lumpectomy, chemo and radio therapy. Then last March I discovered I have the BRCA1 gene. I had a double…Continue

Where is everybody? Anybody?

Started by Iresine Woolf in Waiting Room Sep 4. 0 Replies

Hello,I have just spent a pleasant hour with Sinead at the Marriott Hotel in South Manchester, we were expecting to see others there but no-one else turned up.I know many people couldn't make it but I didn't see that the event was…Continue

I'm new.

Started by Lauren Mailich in New here? Why not introduce yourself... Last reply by Tanya Palmer Sep 3. 13 Replies

Hi my name is Lauren, I'm married to an amazing man and have 2 kids. I'm 38 and was diagnosed with brca 1 just over a year ago. The decision to have the double mastectomy and nipples removed with diep flap reconstruction was rather easy. I had my…Continue

Consultant

Started by Karen Ejdelman in Preventative Surgery. Last reply by Alice Sullivan Sep 2. 1 Reply

Hi has anyone been a patient under Mr J Wood, at Welwyn Garden City hospital? Just got an appointment through and was wondering if anyone has had any experience there?

 
 
 
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