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Hi, the NHS would not test me for BRCA as all relevant relatives were deceased. Private testing revealed I had BRCA 2. One Doctor suggested a might be eligible for a refund but my trust are not having any of it.Anyone else had any simile…Continue
Hi all,Having had far too much time on my hands to pore over the media coverage and think about it, I wondered if anyone else had similar thoughts to me.First of all, I am 100% behind Angelina Jolie going public with her surgeries and I think it can…Continue
Our next Manchester Meet up will be in February - date tbc.We meet at the Marriot Manchester Airport where there is 3 hours free parking and a very convenient Starbucks.We get together to chat, exchange stories and advice, and make friends, if you…Continue
Hi everyone.I'm Irina. I've just turned 29.BRCA-1 positive so as my mum. Mum had breast cancer and lumpectomy back in 2004 when I was finishing school.Grandma died in 2007 after having 3 operations and multiple treatments for breast and ovarian…Continue
Looking for your stories and any advice please, ladies... How/when did you tell your boss you were planning a preventative mastectomy? Has anyone had any issues because their surgery was elective? I am 37 years old and tested BRCA2+ in 2010. I opted…Continue
Although we are having our next meet up in Edinburgh everyone is welcome if they are happy to travel. (Particularly across Scotland)Thought I would add this here incase some of you are not already members of the Glasgow or West of Scotland groups on…Continue
Good morning to all, a bit about me. I'm 31 and live in surrey, I was tested and found to be carrying the BRCA1 gene. I was tested as my older Sister was diagnosed with breast cancer aged 28. She went through treatment and had a full mastectomy and…Continue
Dear allYou may have heard the combined pill can reduce the risk for ovarian cancer by around 50%. I have BRCA2 and have had a preventative mastectomy in May 2015 in Leeds. Im 37, normal weight and no health complications and wondering whether to…Continue
Hello thereI was wondering if I could have some advise. I had reconstructive surgery in May 2015, Everything seems to have gone OK, I need to arrange a follow up apt as have not been seen for ages. Since the surgery one breast in particular has…Continue
Just wondering if anyone out there with private health Insurance found they were covered when it comes to preventative surgery ? Seems a grey area as they say you are not actualy ill and yet you will cos them a lot more money if you get ill and your…Continue