Pain and now a lump in my armpit

Started by Heather in Preventative Surgery. Last reply by Elaine Learner on Monday. 6 Replies 2 Likes

Hello all, looking for some advice if possible please? I have the brca1 gene and had bilateral surgery with reconstruction in July 2017. Since then recovery has been good. I'e got general numbness across both breasts but I do get the shooting pains…Continue

Hey I'm new - interested in finding out more 'natural' preventative measures and ages for preventative surgery

Started by Hayley in New here? Why not introduce yourself... Last reply by Katie Clare Jun 8. 15 Replies 0 Likes

Hey everyone, I'm new to the group and recently found out I am a carrier of the BRCA 1 mutation. I lost my Mum to Ovarian cancer when she was 44 and we found out last year that she was also a carrier of the mutation (she'd donated blood to Oxford…Continue

Nipple question

Started by Matilda in Preventative Surgery. Last reply by Natalie Jun 8. 6 Replies 1 Like

Evening everyone. I would like to know how much feeling, if any, you have left in your nipples after nipple-sparing mastectomy? Idea of breasts feeling 'numb' puts me off surgery more than anything. I found out I have BRCA1 a year ago, and feel no…Continue

Breast Surgeon recommendation

Started by Karen Ejdelman in Preventative Surgery. Last reply by Heather May 30. 18 Replies 0 Likes

Hi my name is Karen, I am new to this group. I am a BRCA 1 carrier and i am meeting with my genetics counsellor to discuss my options in a few days. I live in London. Please anyone recommend a good breast surgeon? Many ThanksContinue

Fallopian tube removal only?

Started by Natalie in Preventative Surgery. Last reply by Natalie May 26. 2 Replies 0 Likes

Hi Everyone. I'm new to this group. I have a BRCA2 mutation and had a nipple sparing, direct implants surgery last year. I'm 37 and have the option now of participating in a trial to have my fallopian tubes ONLY removed. Has anyone else had this…Continue

Flat - Any photos?

Started by Katie Clare in Preventative Surgery. Last reply by Natalie May 26. 1 Reply 0 Likes

HelloThis is my first visit to BRCA Umbrella and I have been busy commenting on lots of posts and exploring everywhere - so sorry for temporarily taking over the forum homepage!I am considering going flat and would be interested to see any photos of…Continue

New here - anybody not had prophylactic mastectomy?

Started by Christine Lynch in New here? Why not introduce yourself... Last reply by Katie Clare May 25. 3 Replies 0 Likes

Hellomy name is Christine and I'm BRCA1 positive.  I'm 47 (eek!) and have had the BSO 4 years ago.  Fortunately I haven't had any major menopausal effects but I started taking raloxifene 2 years ago to build bone density as I was found to have…Continue

Tattoo Artist recommendations...

Started by Sam Carroll in I need advice, have a question, can you help?. Last reply by Katie Clare May 25. 1 Reply 0 Likes

Do you have any recommendations for mastectomy tattoo artists? I can find loads in the US but none in the UK!ThanksSamContinue

Female hormones key to breast and ovarian cancer in BRCA gene carriers

Started by Caroline (Network Administrator) in Cancer and the BRCA gene. Last reply by Katie Clare May 25. 9 Replies 15 Likes

Here are two links to some very interesting research that my Consultant Professor Usha Menon is working on.  It is looking at the link between female hormones and ovarian and breast cancer in BRCA gene carriers.  I will hopefully be working with her…Continue

Tags: hormones

Shortage of Genetic Counsellors due to immigration rules

Started by Julie Vigers in News & Articles from the media. Last reply by Sophie Giles May 23. 1 Reply 0 Likes

Hello EveryoneI wondered if there is anything people in this community would like to do in response to the shortage of genetic counsellors unable to get work visas,…Continue