BRCA Umbrella - The BRCA Gene and You


If you wish to contact BRCA Umbrella for media/other enquiries, please email

Reconstruction Photos can be found HERE

A useful factfile full of abbreviations and jargon-busting definitions can be found HERE


Active Conversations

Disconnected (1 online)


    You are disconnected from chat. Connect to join the chat.

    Suspended From Chat

    Sign up to chat on BRCA Umbrella - The BRCA Gene and You.

    Sign Up


    NHS declined testing but private testing found positive BRCA 2

    Started by Helen Leggott in Preventative Surgery. Last reply by Helen Leggott on Wednesday. 2 Replies

    Hi, the NHS would not test me for BRCA as all relevant relatives were deceased.  Private testing revealed I had BRCA 2.  One Doctor suggested a might be eligible for a refund but my trust are not having any of it.Anyone else had any simile…Continue

    Media portrayal of BRCA mutation..

    Started by Katie Whitehead in Cancer and the BRCA gene. Last reply by jaymew on Tuesday. 8 Replies

    Hi all,Having had far too much time on my hands to pore over the media coverage and think about it, I wondered if anyone else had similar thoughts to me.First of all, I am 100% behind Angelina Jolie going public with her surgeries and I think it can…Continue

    Manchester meetup 2016!

    Started by Karen Cotton (Admin) in Preventative Surgery. Last reply by Karen Cotton (Admin) on Monday. 1 Reply

    Our next Manchester Meet up will be in February - date tbc.We meet at the Marriot Manchester Airport where there is 3 hours free parking and a very convenient Starbucks.We get together to chat, exchange stories and advice, and make friends, if you…Continue

    Hi, I'm new.

    Started by Irina in New here? Why not introduce yourself... Last reply by Irina Feb 6. 8 Replies

    Hi everyone.I'm Irina. I've just turned 29.BRCA-1 positive so as my mum. Mum had breast cancer and lumpectomy back in 2004 when I was finishing school.Grandma died in 2007 after having 3 operations and multiple treatments for breast and ovarian…Continue

    Preventative mastectomy - How/when did you tell your employer?

    Started by Mrs Simpson in Preventative Surgery. Last reply by Kasandra Grass Feb 5. 6 Replies

    Looking for your stories and any advice please, ladies... How/when did you tell your boss you were planning a preventative mastectomy? Has anyone had any issues because their surgery was elective? I am 37 years old and tested BRCA2+ in 2010. I opted…Continue

    Tags: Employer

    Scotland (Edinburgh meet up)

    Started by Lisa France (Glasgow Co-ord) in Admin Feb 1. 0 Replies

    Although we are having our next meet up in Edinburgh everyone is welcome if they are happy to travel. (Particularly across Scotland)Thought I would add this here incase some of you are not already members of the Glasgow or West of Scotland groups on…Continue

    Decision, Decisions

    Started by Katie Crowhurst in I need advice, have a question, can you help? Jan 26. 0 Replies

    Good morning to all, a bit about me. I'm 31 and live in surrey, I was tested and found to be carrying the BRCA1 gene. I was tested as my older Sister was diagnosed with breast cancer aged 28. She went through treatment and had a full mastectomy and…Continue

    the pill as a preventative measure for ovarian cancer?

    Started by Helen Leggott in I need advice, have a question, can you help?. Last reply by Mrs Simpson Jan 22. 1 Reply

    Dear allYou may have heard the combined pill can reduce the risk for ovarian cancer by around 50%.  I have BRCA2 and have had a preventative mastectomy in May 2015 in Leeds.  Im 37, normal weight and no health complications and wondering whether to…Continue

    Advice following mastectomy and reconstructive surgery using implants

    Started by Helen Leggott in I need advice, have a question, can you help?. Last reply by Katie Whitehead Jan 12. 1 Reply

    Hello thereI was wondering if I could have some advise.  I had reconstructive surgery in May 2015,  Everything seems to have gone OK,  I need to arrange a follow up apt as have not been seen for ages.  Since the surgery one breast in particular has…Continue


    Started by Charlotte Gilmour in I need advice, have a question, can you help?. Last reply by V Jan 1. 11 Replies

    Just wondering if anyone out there with private health Insurance found they were covered when it comes to preventative surgery ? Seems a grey area as they say you are not actualy ill and yet you will cos them a lot more money if you get ill and your…Continue


    Blog Posts

    new date

    Posted by Jane Simone Harrison on February 9, 2016 at 17:18 0 Comments

    Good News

    Posted by Vicki Jackson on February 6, 2016 at 22:44 0 Comments

    Feeling drained and fed up!

    Posted by Laura Friend on February 4, 2016 at 12:12 3 Comments

    New Member

    Posted by Sherry Hastings on February 2, 2016 at 23:00 1 Comment

    © 2016   Created by Caroline (Network Administrator).   Powered by

    Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service