BRCA Umbrella - The BRCA Gene and You

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Reconstruction Photos can be found HERE

A useful factfile full of abbreviations and jargon-busting definitions can be found HERE


Nipple question

Started by Matilda in Preventative Surgery. Last reply by Matilda Mar 18. 4 Replies

Evening everyone. I would like to know how much feeling, if any, you have left in your nipples after nipple-sparing mastectomy? Idea of breasts feeling 'numb' puts me off surgery more than anything. I found out I have BRCA1 a year ago, and feel no…Continue

Are you related to me? I have a BRCA2 variant...

Started by Mary Ann Hoffman in I need advice, have a question, can you help? Mar 12. 0 Replies

A couple of years ago, I added my BRCA2 gene variant to the FORCE website database and was contacted recently by a lady who shares the same gene variant (she’s from Maryland, USA). We’ve not figured out how we’re related – yet!Both of our families…Continue

Looking for women in/near New York to talk about BRCA experiences!

Started by Lisa in Preventative Surgery Feb 28. 0 Replies

Hi all, I'm a 32-year-old journalist in New York City and am BRCA 2+. I'm currently working on a documentary film on the difficulty of the decision around whether or not to move forward with a prophylactic mastectomy. It's focused on the emotional…Continue

Any advice for dealing with a natural menopause whilst awaiting surgery?

Started by Sally Cornwell in I need advice, have a question, can you help?. Last reply by Sally Cornwell Feb 27. 2 Replies

Hello there,I am Sally, 50 years old and was diagnosed with BRCA1 just over a year ago. My Mum had ovarian cancer aged 52 and was tested for the gene 20 years later, and i was subsequently tested. I've been really lucky to avoid any cancers so far,…Continue

Mastectomy - over 50

Started by Elizabeth Stone in Preventative Surgery. Last reply by Louise Birdsall Feb 27. 6 Replies

Hello, I'm new here, I have a strong family history of Breast and Ovarian cancer and I am BRCA1positive. I have recently had a BSO and have an appointment to discuss a mastectomy. I was wondering if there are any other older women 50+ who are…Continue

Hey I'm new - interested in finding out more 'natural' preventative measures and ages for preventative surgery

Started by Hayley in New here? Why not introduce yourself... Last reply by Laura Barbour Feb 2. 2 Replies

Hey everyone, I'm new to the group and recently found out I am a carrier of the BRCA 1 mutation. I lost my Mum to Ovarian cancer when she was 44 and we found out last year that she was also a carrier of the mutation (she'd donated blood to Oxford…Continue

Fallopian tube removal only?

Started by Natalie in Preventative Surgery Feb 1. 0 Replies

Hi Everyone. I'm new to this group. I have a BRCA2 mutation and had a nipple sparing, direct implants surgery last year. I'm 37 and have the option now of participating in a trial to have my fallopian tubes ONLY removed. Has anyone else had this…Continue

Advice about DIEP

Started by Elizabeth Karen Platt in Preventative Surgery Feb 1. 0 Replies

I have recently found out I am BRCA 2 positive following lumpectomy and Chemo for breast surgery. I would love some advice/insight into DIEP surgery please. waiting on an appointment at Wythenshawe Manchester to see if I can have it done. I have…Continue

Bilateral salpingo-oophorectomy

Started by Jules in Preventative Surgery. Last reply by Jules Jan 30. 4 Replies

Hello,I just joined this site and am very glad to have found it. I was diagnosed with ductal carcinoma in situ in July 2017 (right breast). My sister had been diagnosed with breast cancer 3 months earlier. My mum had breast cancer and her…Continue

Hi New here. BRCA2 - had triple neg breast cancer and OC

Started by Teresa in New here? Why not introduce yourself.. Jan 30. 0 Replies

Hi to all.Appologies that this is so long, but I have had a journey to this point!I had triple neg breast cancer 5 years ago.... unfortunately the breast specialist I was referred to 9 months earlier told me to go home, learn how to check my breasts…Continue

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