BRCA Umbrella - The BRCA Gene and You

Latest Activity

Natalie replied to susan mackenzie's discussion Surveillance after PBM and BSO
Tuesday
Natalie replied to Natalie's discussion Fallopian tube removal only?
Tuesday
Gabby Ara replied to Natalie's discussion Fallopian tube removal only?
Dec 4
Hilary Bull replied to Ellen Schubert's discussion MRI Screening in Hertfordshire in the group Hertfordshire/North London and surrounding areas meet-up
Nov 23
Ellen Schubert replied to Ellen Schubert's discussion MRI Screening in Hertfordshire in the group Hertfordshire/North London and surrounding areas meet-up
Nov 23
Hilary Bull replied to Ellen Schubert's discussion MRI Screening in Hertfordshire in the group Hertfordshire/North London and surrounding areas meet-up
Nov 21
Ellen Schubert replied to snow's discussion how does mastectomy reduce risk?
Nov 21
Sam Carroll replied to Ellen Schubert's discussion MRI Screening in Hertfordshire in the group Hertfordshire/North London and surrounding areas meet-up
Nov 21
Ellen Schubert updated their profile
Nov 21
Ellen Schubert added a discussion to the group Hertfordshire/North London and surrounding areas meet-up
Nov 21
Ellen Schubert joined Caroline (Network Administrator)'s group
Nov 21
Jordon Creasey updated their profile
Nov 20
Jordon Creasey posted a status
"Any body know how much it would be for full comp private health insurance with the BRCA1 gene? TIA"
Nov 20
Eleanor Howie posted a discussion
Nov 19
susan mackenzie updated their profile
Nov 12
susan mackenzie posted a discussion
Nov 12
Michelle Bryson replied to Michelle Bryson's discussion Pain starting 2 1/2 years post PBM with reconstruction
Oct 6
snow replied to Michelle Bryson's discussion Pain starting 2 1/2 years post PBM with reconstruction
Oct 5
snow posted a discussion
Oct 4
snow updated their profile
Oct 4
 

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Forum

Surveillance after PBM and BSO

Started by susan mackenzie in Preventative Surgery. Last reply by Natalie on Tuesday. 1 Reply

Dear ladies I am two years post PBM and 5 yrs post BSO, I see no drs for any surveillance and was wondering if this is the norm.Although I’ve had the preventative surgery the fear of getting something has not gone away and I’m sure I would find an…Continue

Fallopian tube removal only?

Started by Natalie in Preventative Surgery. Last reply by Natalie on Tuesday. 4 Replies

Hi Everyone. I'm new to this group. I have a BRCA2 mutation and had a nipple sparing, direct implants surgery last year. I'm 37 and have the option now of participating in a trial to have my fallopian tubes ONLY removed. Has anyone else had this…Continue

how does mastectomy reduce risk?

Started by snow in Preventative Surgery. Last reply by Ellen Schubert Nov 21. 1 Reply

Hi everyone :)I'm sorry if this sounds very obvious I had a preventative mastectomy @ 33 years old and actually still don't understand how my risk has been reduced :/ Unless I'm understanding the whole process incorrectly ( which is I'm sure very…Continue

Post mastectomy lingerie

Started by Eleanor Howie in New here? Why not introduce yourself.. Nov 19. 0 Replies

Hi everyoneI am a long term member but first time poster. My name is Ellie and my sister and I have the BRCA1 gene. We both underwent double mastectomies with expander reconstructions when we were 24 (8 years ago for me). Both of us have really…Continue

Pain starting 2 1/2 years post PBM with reconstruction

Started by Michelle Bryson in I need advice, have a question, can you help?. Last reply by Michelle Bryson Oct 6. 2 Replies

Hi All,I had a PBM with implant reconstruction (under muscle layer) and have had no problems at all up until now 2 and a half years later!!It started with a swollen feeling in both breasts and a slight increase in temperature. This lasted for a…Continue

Tags: nerve pain

Mastectomy - over 50

Started by Elizabeth Stone in Preventative Surgery. Last reply by Elizabeth Stone Sep 9. 12 Replies

Hello, I'm new here, I have a strong family history of Breast and Ovarian cancer and I am BRCA1positive. I have recently had a BSO and have an appointment to discuss a mastectomy. I was wondering if there are any other older women 50+ who are…Continue

PALB2

Started by Dotty in Waiting Room. Last reply by Dotty Jul 5. 1 Reply

so tomorrow we get the results of dad’s palb2 test. I can not find anything on here about PALB2 and wondered if anybody else has any experience?Previously, through genetics, I had been categorised as being high risk, due to significant family…Continue

Where are you??

Started by Caroline (Network Administrator) in New here? Why not introduce yourself... Last reply by Nicole Drapaniotis Jun 26. 105 Replies

I have set up a couple of Zee Maps which will make it easier for us to see where everyone is located and arrange some local support groups.For UK residents - Go to …Continue

BRCA 2 - ovary surveillance

Started by lorraine Owen in I need advice, have a question, can you help?. Last reply by Nicole Drapaniotis Jun 3. 1 Reply

HiI’m BRCA 2 and had mastectomy with tummy fat reconstruction 7 years ago. I am now 45 and it’s time to think about my ovaries. I’ve been enrolled onto a blood test surveillance scheme but my first blood test has come back with .higher levels than…Continue

PBM. Check. Surgery to remove ovaries - Can't bring myself to do it.

Started by mamaoffour in Preventative Surgery. Last reply by mamaoffour Mar 25. 3 Replies

Hi everyone, I haven't been on here for some time for a number of reasons but absolutely love the community support and feel of this place and am so grateful to have access to it.I'll start with a short recap of the past 5 years (pls bear with me)We…Continue

 
 
 
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