BRCA Umbrella - The BRCA Gene and You

Latest Activity

LeslieB posted a discussion
Jun 3
Lorna M posted a discussion
Aug 16, 2023
Jordon Creasey posted a discussion
Mar 18, 2023
Rachel Goodsell updated their profile
Jun 23, 2022
Lisa B commented on Sarah Raine's blog post Take 5-there will be no take 6.
Feb 17, 2022
Samantha commented on Sarah Raine's blog post Take 5-there will be no take 6.
Feb 14, 2022
Samantha commented on Sarah Raine's blog post Take 5-there will be no take 6.
Feb 14, 2022
Samantha commented on Sarah Raine's blog post Take 5-there will be no take 6.
Feb 14, 2022
Cazpez posted a blog post
Feb 12, 2022
Lisa B updated their profile
Jan 23, 2022
Lisa B replied to Irina's discussion Where to find the post-surgery bra?
Jan 23, 2022
Lisa B commented on Sarah Raine's blog post Take 5-there will be no take 6.
Jan 23, 2022
Irina posted a discussion
Jan 19, 2022
Samantha commented on Sarah Raine's blog post Take 5-there will be no take 6.
Jan 15, 2022
Lisa B commented on Sarah Raine's blog post Take 5-there will be no take 6.
Dec 7, 2021
Irina updated their profile
Nov 25, 2021
Sarah Raine posted a blog post
Sep 9, 2021
Sarah Raine updated their profile
Sep 9, 2021
Kylie replied to Kylie's discussion Surgery on Monday!
Jun 15, 2021
Kylie replied to Kylie's discussion Surgery on Monday!
Jun 12, 2021
 

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Forum

Revision surgery for capsular contracture

Started by LeslieB in Preventative Surgery Jun 3. 0 Replies

Not sure if anyone is still active on this site, but if you are, I'd welcome any feedback.I had a BRCA2 bilateral mastectomy and 2 stage sub-pectoral recon with tissue expanders in 2016/2017. I now have capsular contracture in one side and after…Continue

BSO operation / started HRT in 2012. Is there a recommended time limit with BRCA1?

Started by Lorna M in I need advice, have a question, can you help? Aug 16, 2023. 0 Replies

Hi there allRejoined after a good few years away from the umbrella!I am 50 in a couple of weeks and have been on HRT since 2012 following BSO surgeryCan anyone advise if they are in/have been in similar position and continued to take or were advised…Continue

Tags: #HRT

Nipple piercings and mastectomy?

Started by Jordon Creasey in Preventative Surgery Mar 18, 2023. 0 Replies

Does anyone know how nipple piercings stand in regards to risk reducing surgery? I’ve always wanted to get them done but don’t see the point if it will affect my RRS

Where to find the post-surgery bra?

Started by Irina in Preventative Surgery. Last reply by Lisa B Jan 23, 2022. 1 Reply

Hi all,I have delayed my double mastectomy+reconstruction for a number of years but I’m now ready. My surgery will take place in a couple of weeks’ time. I was wondering if someone could recommend a bra model/brand/store for the post-surgery period…Continue

Tags: Bra

Surgery on Monday!

Started by Kylie in Preventative Surgery. Last reply by Sarah Jun 15, 2021. 9 Replies

Morning all, hope you are all well. I’ve got my surgery on Monday and o have my ovaries and tubes removed. Feeling ok, but haven’t had any discussions about which HRT I will be on. I’m 36 and hoping they will send me home with something!

Implant issue - 10 years post op

Started by Sarah Kemble in I need advice, have a question, can you help? Apr 24, 2020. 0 Replies

I am 10 years post double mastectomy with saline expander implants following brca1 diagnosis (no cancer). Today I noticed my right implant has deflated. To late to ring the hospital, I am under the Royal Marsden. Any issues I should be concerned…Continue

10 years post op - implant exchange

Started by Danielle Stevens in I need advice, have a question, can you help? Jan 5, 2020. 0 Replies

Hi everyone, it’s been a very long time since I’ve been on here. I’m 10 years post op in April from bilateral LD Flap Reconstruction. At the time of surgery I was told that the implants would gave to be replaced after 10 years. A few years ago they…Continue

Surveillance after PBM and BSO

Started by susan mackenzie in Preventative Surgery. Last reply by Natalie Dec 10, 2019. 1 Reply

Dear ladies I am two years post PBM and 5 yrs post BSO, I see no drs for any surveillance and was wondering if this is the norm.Although I’ve had the preventative surgery the fear of getting something has not gone away and I’m sure I would find an…Continue

Fallopian tube removal only?

Started by Natalie in Preventative Surgery. Last reply by Natalie Dec 10, 2019. 4 Replies

Hi Everyone. I'm new to this group. I have a BRCA2 mutation and had a nipple sparing, direct implants surgery last year. I'm 37 and have the option now of participating in a trial to have my fallopian tubes ONLY removed. Has anyone else had this…Continue

how does mastectomy reduce risk?

Started by snow in Preventative Surgery. Last reply by Ellen Schubert Nov 21, 2019. 1 Reply

Hi everyone :)I'm sorry if this sounds very obvious I had a preventative mastectomy @ 33 years old and actually still don't understand how my risk has been reduced :/ Unless I'm understanding the whole process incorrectly ( which is I'm sure very…Continue

 
 
 
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