BRCA Umbrella - The BRCA Gene and You

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Stephanie joined Caroline (Network Administrator)'s group
4 hours ago
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Stephanie replied to Stephanie's discussion Day 2 Post Surgery
5 hours ago
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"Hi Jill. Thank you for your e-mail - the website will be super-helpful in my decision making and hopefully I'll be able to help others too!"
Catherine Jolliffe is now a member of BRCA Umbrella - The BRCA Gene and You
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Reconstruction Photos can be found HERE

A useful factfile full of abbreviations and jargon-busting definitions can be found HERE


Day 2 Post Surgery

Started by Stephanie in New here? Why not introduce yourself... Last reply by Stephanie 5 hours ago. 2 Replies

Hi I'm new here. I'm 34 living in the West Midlands. I had my surgery on Thursday, bilateral risk reducing double mastectomy with immediate reconstruction. I came yesterday, feeling bit sore and tender today and muscles aching all over but otherwise…Continue

Life insurance for a mortgage

Started by Lorna M in Insurance yesterday. 0 Replies

HI thereI have the BRCA 1 gene deformity and have lost my Mum and sister to Ovarian cancer.  My husband and I are seeking life cover for our mortgage - when I last applied for a mortgage not all of above had occurred/was known to me.I have also had…Continue

My first operation complete

Started by Laura ( Beth) Robinson in Preventative Surgery. Last reply by Barbara Flood Apr 27. 3 Replies

Hello all my fellow BRCA sisters,Thursday I had my first of two surgeries needed for cancer risk reduction.I'm recovering well that's still pretty darn painful in my abdomen.I'm feeling hopeful about this it was hard for me to believe that I had to…Continue

Introducing myself

Started by Jenny Mitchell in New here? Why not introduce yourself... Last reply by gill baker Apr 27. 4 Replies

Hello, I have known about my BRCA1 status since 2003 and have long since come to terms with it.  In fact, I would have been more shocked if it was a negative result, having watched my mum battle breast cancer three times ages 29, 40 and 51.  Sadly…Continue

Advice on preventative surgery

Started by Victoria in Preventative Surgery. Last reply by Laura Friend Apr 26. 1 Reply

Hi there, I wanted to ask some advice on surgeons and bilateral preventative masectomy surgery with immediate reconstruction. I am BRAC 2 + and have decided on preventative surgery but am concerned about chosing the right surgeon. I am under the…Continue

BRCA protect research

Started by Caroline in Cancer and the BRCA gene Apr 25. 0 Replies

Just a reminder to all you lovely ladies out there in BRCA land to try and get involved in the research program that's been carried out in University College London Hospital. It's all very simple, I signed up last week when I saw the link Caroline…Continue

Donating 2 post surgery compression bras

Started by Kirsten Grenside in Preventative Surgery Apr 25. 0 Replies

Dear Fellow BRCA friends who live in the UK,I am BRCA 2 and had my PBM 9 months ago.  I was told by my surgeon that I needed to buy a compression bra that would be put on my chest immediately following surgery.  I struggled finding them in London…Continue

Running today, wish me luck!

Started by Lisa JC in Preventative Surgery. Last reply by Kirsten Grenside Apr 24. 2 Replies

Hi allI'm running in the London marathon today for the Breast Cancer Now charity. I'm BRCA2+ and this will be my second marathon since my double preventative mastectomy direct to implants in 2013. It will be my first run since having a baby 12…Continue

Changes to body after surgery

Started by Anna Crescenzo in Preventative Surgery Apr 24. 0 Replies

Hey lovelies!So.... I had my preventative double mast about a year and a half ago now. After my operation I started getting psorasis on different parts of my body, but the first place I got it was my cleavage. Just wondering if anyone has had this…Continue

Preventative Surgery Dates (Pay it Forward Boxes Volunteers)

Started by Carla Atherton in Preventative Surgery. Last reply by Carla Atherton Apr 24. 14 Replies

Hi All,The 'Pay it forward' box is where women volunteer to put together a little gift box that is full of 'essentials' ready for another woman's preventative surgery. The idea is, once you are fully healed, you can then volunteer to 'pay it…Continue


Blog Posts


Posted by Nik watchman on April 26, 2016 at 21:09 0 Comments

I'm Alive!

Posted by Katie Whitehead on April 24, 2016 at 18:30 0 Comments

surgery for PBM

Posted by Pav Wima on April 23, 2016 at 6:43 3 Comments


Posted by Victoria Shackleton on April 19, 2016 at 14:42 2 Comments

Hello World!

Posted by Traci Davis on April 17, 2016 at 17:12 2 Comments

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