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Hilary Bull replied to Hilary Bull's discussion Meeting up or having a buddy in the group Hertfordshire/North London and surrounding areas meet-upSusan Linda Hart replied to Hilary Bull's discussion Meeting up or having a buddy in the group Hertfordshire/North London and surrounding areas meet-up
Hilary Bull added a discussion to the group Hertfordshire/North London and surrounding areas meet-up
mamaoffour replied to mamaoffour's discussion PBM. Check. Surgery to remove ovaries - Can't bring myself to do it.mamaoffour replied to mamaoffour's discussion PBM. Check. Surgery to remove ovaries - Can't bring myself to do it.WHEN YOU JOIN BRCA UMBRELLA, YOU WILL BE SENT AN EMAIL ASKING FOR FURTHER DETAILS. PLEASE LOOK FOR IT IN YOUR SPAM FOLDER IF IT DOESN'T APPEAR IN YOUR INBOX.
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Forum
PALB2
Started by Dotty in Waiting Room. Last reply by Dotty Jul 5. 1 Reply 0 Likes
so tomorrow we get the results of dad’s palb2 test. I can not find anything on here about PALB2 and wondered if anybody else has any experience?Previously, through genetics, I had been categorised as being high risk, due to significant family…Continue
Where are you??
Started by Caroline (Network Administrator) in New here? Why not introduce yourself... Last reply by Nicole Drapaniotis Jun 26. 105 Replies 6 Likes
I have set up a couple of Zee Maps which will make it easier for us to see where everyone is located and arrange some local support groups.For UK residents - Go to …Continue
BRCA 2 - ovary surveillance
Started by lorraine Owen in I need advice, have a question, can you help?. Last reply by Nicole Drapaniotis Jun 3. 1 Reply 0 Likes
HiI’m BRCA 2 and had mastectomy with tummy fat reconstruction 7 years ago. I am now 45 and it’s time to think about my ovaries. I’ve been enrolled onto a blood test surveillance scheme but my first blood test has come back with .higher levels than…Continue
PBM. Check. Surgery to remove ovaries - Can't bring myself to do it.
Started by mamaoffour in Preventative Surgery. Last reply by mamaoffour Mar 25. 3 Replies 0 Likes
Hi everyone, I haven't been on here for some time for a number of reasons but absolutely love the community support and feel of this place and am so grateful to have access to it.I'll start with a short recap of the past 5 years (pls bear with me)We…Continue
Preventative removal of ovaries due to BRCA1
Started by Nicole Drapaniotis in Preventative Surgery Mar 19. 0 Replies 0 Likes
Hi,I found out I have the BRCA1 mutation in 2006. I had the preventative mastectomy in Mar 2007. My family history of breast cancer is huge but I was under the impression that none of my aunties/cousins had ovarian cancer. I have 1 uncle who had…Continue
STOP Workplace Cancer Disability Discrimination
Started by Rose Bloom in Waiting Room Feb 15. 0 Replies 0 Likes
My fellow BRCA ladies,After breast cancer in 2016 with chemo and extensive surgery, followed by BSO in 2017 I on top had to deal with the discriminatory conduct of my former employer. I will be heard in the Employment Tribunal in London in April and…Continue
surgical menopause
Started by Alison in Preventative Surgery. Last reply by Sarah Jan 11. 6 Replies 0 Likes
Hi everyone, my name is Alison and I was tested positive for BRCA 1 about 8 years ago. it didn't come as a big surprise to me given an extensive family history. I had regular MRI scans but decided to go ahead with the pbm 2 years ago.I had this done…Continue
Has anyone well into their 40s NOT had ovaries removed yet?
Started by Bel in Surveillance Screening or Surgery?. Last reply by Sarah Jan 11. 5 Replies 0 Likes
Hello,I'm new to this forum: had Triple neg BC in 2002 aged 31, and only years later, after I was in remission, found out I carry the BRCA1 mutation. I'm having my breast op in December. But, despite being in my mid 40s, I am still extremely…Continue
Hey I'm new - interested in finding out more 'natural' preventative measures and ages for preventative surgery
Started by Hayley in New here? Why not introduce yourself... Last reply by Kazz Jan 2. 16 Replies 0 Likes
Hey everyone, I'm new to the group and recently found out I am a carrier of the BRCA 1 mutation. I lost my Mum to Ovarian cancer when she was 44 and we found out last year that she was also a carrier of the mutation (she'd donated blood to Oxford…Continue
Pain and now a lump in my armpit
Started by Heather in Preventative Surgery. Last reply by Kazz Dec 31, 2018. 7 Replies 2 Likes
Hello all, looking for some advice if possible please? I have the brca1 gene and had bilateral surgery with reconstruction in July 2017. Since then recovery has been good. I'e got general numbness across both breasts but I do get the shooting pains…Continue
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