BRCA Umbrella - The BRCA Gene and You

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If you wish to contact BRCA Umbrella for media/other enquiries, please email caroline.presho@brcaumbrella.org.uk

Reconstruction Photos can be found HERE

A useful factfile full of abbreviations and jargon-busting definitions can be found HERE

Forum

Where are you??

Started by Caroline (Network Administrator) in New here? Why not introduce yourself... Last reply by Nicole Drapaniotis yesterday. 105 Replies 6 Likes

I have set up a couple of Zee Maps which will make it easier for us to see where everyone is located and arrange some local support groups.For UK residents - Go to …Continue

PALB2

Started by Dotty in Waiting Room Jun 16. 0 Replies 0 Likes

so tomorrow we get the results of dad’s palb2 test. I can not find anything on here about PALB2 and wondered if anybody else has any experience?Previously, through genetics, I had been categorised as being high risk, due to significant family…Continue

BRCA 2 - ovary surveillance

Started by lorraine Owen in I need advice, have a question, can you help?. Last reply by Nicole Drapaniotis Jun 3. 1 Reply 0 Likes

HiI’m BRCA 2 and had mastectomy with tummy fat reconstruction 7 years ago. I am now 45 and it’s time to think about my ovaries. I’ve been enrolled onto a blood test surveillance scheme but my first blood test has come back with .higher levels than…Continue

PBM. Check. Surgery to remove ovaries - Can't bring myself to do it.

Started by mamaoffour in Preventative Surgery. Last reply by mamaoffour Mar 25. 3 Replies 0 Likes

Hi everyone, I haven't been on here for some time for a number of reasons but absolutely love the community support and feel of this place and am so grateful to have access to it.I'll start with a short recap of the past 5 years (pls bear with me)We…Continue

Preventative removal of ovaries due to BRCA1

Started by Nicole Drapaniotis in Preventative Surgery Mar 19. 0 Replies 0 Likes

Hi,I found out I have the BRCA1 mutation in 2006. I had the preventative mastectomy in Mar 2007. My family history of breast cancer is huge but I was under the impression that none of my aunties/cousins had ovarian cancer. I have 1 uncle who had…Continue

STOP Workplace Cancer Disability Discrimination

Started by Rose Bloom in Waiting Room Feb 15. 0 Replies 0 Likes

My fellow BRCA ladies,After breast cancer in 2016 with chemo and extensive surgery, followed by BSO in 2017 I on top had to deal with the discriminatory conduct of my former employer. I will be heard in the Employment Tribunal in London in April and…Continue

surgical menopause

Started by Alison in Preventative Surgery. Last reply by Sarah Jan 11. 6 Replies 0 Likes

Hi everyone, my name is Alison and I was tested positive for BRCA 1 about 8 years ago. it didn't come as a big surprise to me given an extensive family history. I had regular MRI scans but decided to go ahead with the pbm 2 years ago.I had this done…Continue

Has anyone well into their 40s NOT had ovaries removed yet?

Started by Bel in Surveillance Screening or Surgery?. Last reply by Sarah Jan 11. 5 Replies 0 Likes

Hello,I'm new to this forum: had Triple neg BC in 2002 aged 31, and only years later, after I was in remission, found out I carry the BRCA1 mutation. I'm having my breast op in December. But, despite being in my mid 40s, I am still extremely…Continue

Hey I'm new - interested in finding out more 'natural' preventative measures and ages for preventative surgery

Started by Hayley in New here? Why not introduce yourself... Last reply by Kazz Jan 2. 16 Replies 0 Likes

Hey everyone, I'm new to the group and recently found out I am a carrier of the BRCA 1 mutation. I lost my Mum to Ovarian cancer when she was 44 and we found out last year that she was also a carrier of the mutation (she'd donated blood to Oxford…Continue

Pain and now a lump in my armpit

Started by Heather in Preventative Surgery. Last reply by Kazz Dec 31, 2018. 7 Replies 2 Likes

Hello all, looking for some advice if possible please? I have the brca1 gene and had bilateral surgery with reconstruction in July 2017. Since then recovery has been good. I'e got general numbness across both breasts but I do get the shooting pains…Continue