Latest Activity
Sophie Giles replied to Julie Vigers's discussion Shortage of Genetic Counsellors due to immigration rulesSophie Giles replied to Hayley's discussion Hey I'm new - interested in finding out more 'natural' preventative measures and ages for preventative surgeryKatie Clare replied to Hayley's discussion Hey I'm new - interested in finding out more 'natural' preventative measures and ages for preventative surgeryKatie Clare commented on Caroline (Network Administrator)'s group Hertfordshire/North London and surrounding areas meet-up
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Shortage of Genetic Counsellors due to immigration rules
Started by Julie Vigers in News & Articles from the media. Last reply by Sophie Giles 40 minutes ago. 1 Reply 0 Likes
Hello EveryoneI wondered if there is anything people in this community would like to do in response to the shortage of genetic counsellors unable to get work visas,…Continue
Hey I'm new - interested in finding out more 'natural' preventative measures and ages for preventative surgery
Started by Hayley in New here? Why not introduce yourself... Last reply by Sophie Giles 44 minutes ago. 4 Replies 0 Likes
Hey everyone, I'm new to the group and recently found out I am a carrier of the BRCA 1 mutation. I lost my Mum to Ovarian cancer when she was 44 and we found out last year that she was also a carrier of the mutation (she'd donated blood to Oxford…Continue
Pain and now a lump in my armpit
Started by Heather in Preventative Surgery. Last reply by Heather on Friday. 2 Replies 0 Likes
Hello all, looking for some advice if possible please? I have the brca1 gene and had bilateral surgery with reconstruction in July 2017. Since then recovery has been good. I'e got general numbness across both breasts but I do get the shooting pains…Continue
Nipple question
Started by Matilda in Preventative Surgery. Last reply by Julianne May 7. 5 Replies 1 Like
Evening everyone. I would like to know how much feeling, if any, you have left in your nipples after nipple-sparing mastectomy? Idea of breasts feeling 'numb' puts me off surgery more than anything. I found out I have BRCA1 a year ago, and feel no…Continue
Weight gain on Hrt
Started by Ravi in I need advice, have a question, can you help? May 4. 0 Replies 0 Likes
Hi alli had a double mastectomy with Diep flap recon in November 2016. Whilst waiting for ovaries and tubes to be removed I got pregnant!had baby 8 weeks ago and they took my ovaries and tubes out at the same time as c section !I’ve been ok on the…Continue
Where are you??
Started by Caroline (Network Administrator) in New here? Why not introduce yourself... Last reply by Ciara Sheridan Apr 29. 104 Replies 6 Likes
I have set up a couple of Zee Maps which will make it easier for us to see where everyone is located and arrange some local support groups.For UK residents - Go to …Continue
Mastectomy - over 50
Started by Elizabeth Stone in Preventative Surgery. Last reply by CARLA DI MAMBRO Apr 17. 10 Replies 1 Like
Hello, I'm new here, I have a strong family history of Breast and Ovarian cancer and I am BRCA1positive. I have recently had a BSO and have an appointment to discuss a mastectomy. I was wondering if there are any other older women 50+ who are…Continue
Are you related to me? I have a BRCA2 variant...
Started by Mary Ann Hoffman in I need advice, have a question, can you help? Mar 12. 0 Replies 0 Likes
A couple of years ago, I added my BRCA2 gene variant to the FORCE website database and was contacted recently by a lady who shares the same gene variant (she’s from Maryland, USA). We’ve not figured out how we’re related – yet!Both of our families…Continue
Looking for women in/near New York to talk about BRCA experiences!
Started by Lisa in Preventative Surgery Feb 28. 0 Replies 0 Likes
Hi all, I'm a 32-year-old journalist in New York City and am BRCA 2+. I'm currently working on a documentary film on the difficulty of the decision around whether or not to move forward with a prophylactic mastectomy. It's focused on the emotional…Continue
Any advice for dealing with a natural menopause whilst awaiting surgery?
Started by Sally Cornwell in I need advice, have a question, can you help?. Last reply by Sally Cornwell Feb 27. 2 Replies 0 Likes
Hello there,I am Sally, 50 years old and was diagnosed with BRCA1 just over a year ago. My Mum had ovarian cancer aged 52 and was tested for the gene 20 years later, and i was subsequently tested. I've been really lucky to avoid any cancers so far,…Continue
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