BRCA Umbrella - The BRCA Gene and You



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Reconstruction Photos can be found HERE

A useful factfile full of abbreviations and jargon-busting definitions can be found HERE


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    Feeling very positive :-)

    Started by JennaS90 in Preventative Surgery. Last reply by JennaS90 59 minutes ago. 13 Replies

    So guys tomorrow is the day, this time tomorrow I'll be in surgery!I'm feeling very positive and any nerves I had over the last few days seem to have gone away for now which is nice. I'm based in Edinburgh and the surgeons and nurses have been…Continue

    Capsular Contracture

    Started by lynda jeanette in Preventative Surgery. Last reply by lynda jeanette yesterday. 2 Replies

    Its 2 yes 10 mths since I had a dbl mastectomy and breast construction using acellular dermal matrix with implants over muscles. I went onto haveca nipple reconstruction and medical tattoos with great results. Unfortunately I have recently found out…Continue

    Midlands Meet Up?

    Started by Karen Cotton (Admin) in I need advice, have a question, can you help?. Last reply by Katie Whitehead yesterday. 9 Replies

    Caroline and I were throwing ideas around yesterday... We now have an established Manchester Meet Up, and our inaugural Scotland Meet Up went brilliantly last weekend.Our meet up locations are constrained by our locations; Caroline lives in…Continue

    BRCA 2 newbie and double mutant

    Started by Susan in New here? Why not introduce yourself.. on Monday. 0 Replies

    Firstly, apologises!  I joined about a month ago and just getting around to writing this! A bit of backgroundI'm Susan, I'm 37 and I was diagnosed with BRCA2 on Oct 2013. I inherited the gene from my dad - can you believe that three different GP…Continue

    Tags: depression, st barts, Hypermobility Syndrome

    BRCA1 and uterine serous carcinoma

    Started by Daloni Carlisle in New here? Why not introduce yourself.. Aug 20. 0 Replies

    HiI'm new to this forum and new to BRCA. I was diagnosed with uterine serous carcinoma in March 2014; had all the treatment (surgery, chemo, radio, brachy) and have just tested positive for BRCA1. Is there anyone else out there whose primary cancer…Continue

    BSO in Sept - HRT

    Started by Karla Bugatti in Preventative Surgery. Last reply by Karla Bugatti Aug 19. 11 Replies

    Hi All - I am scheduled for a BSO at the end of September. I am terrified at the moment and really cant get my head to go ahead with this .. I hate the thought of nightly sweats / waking up many times and the hot flushes. I did get a Transvirginal…Continue

    Post surgery Nerve pain management

    Started by Kirsten Grenside in I need advice, have a question, can you help?. Last reply by Kirsten Grenside Aug 18. 11 Replies

    Need advice. My name is Kirsten and I have the BRCA 2 gene. 3 weeks ago I had a double mastectomy &reconstructive surgery (implants). Although Dr said it went well, the next day there was a problem with the blood flow around both breasts. Dr…Continue

    BRCA Clinics?

    Started by Vicki Jackson in I need advice, have a question, can you help?. Last reply by Deb Cooper Aug 18. 5 Replies

    Does anyone on here go to a clinic specifically for BRCA? Is there such a thing? Continue

    Web chat ideas...

    Started by Caroline (Network Administrator) in I need advice, have a question, can you help? Aug 18. 0 Replies

    What would you like to chat about in the chat room???  We are looking to have an organised web chat in the not too distant future and need some ideas.....Continue

    Manchester meet up Sunday 16 August hope to see you there!

    Started by Karen Cotton (Admin) in Admin. Last reply by Hilary morrison Aug 16. 16 Replies

    Our next meet up at the Marriott Manchester airport is on Sunday 16th August at 2 pm, we meet at the Starbucks there. There's 3 hours free parking, and it's a lovely chance to meet others, share stories, ask advice, make friends, laugh and above all…Continue


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