BRCA Umbrella - The BRCA Gene and You

Latest Activity

Natalie replied to Natalie's discussion Fallopian tube removal only?
4 hours ago
Natalie replied to Katie Clare's discussion Flat - Any photos?
4 hours ago
Katie Clare posted a discussion
16 hours ago
Katie Clare replied to Christine Lynch's discussion New here - anybody not had prophylactic mastectomy?
16 hours ago
Katie Clare replied to Karen Ejdelman's discussion Breast Surgeon recommendation
16 hours ago
Katie Clare replied to Karen Ejdelman's discussion Breast Surgeon recommendation
16 hours ago
Katie Clare replied to Karen Ejdelman's discussion Breast Surgeon recommendation
16 hours ago
Katie Clare replied to Sam Carroll's discussion Tattoo Artist recommendations...
16 hours ago
Katie Clare replied to Natalie's discussion Fallopian tube removal only?
16 hours ago
Rian replied to Rian's discussion Delayed Reconstruction 2 and a half years after PBM with Tissue Expanders. in the group Reconstruction Photos
16 hours ago
Katie Clare added a discussion to the group No Recon Group
16 hours ago
Katie Clare joined BRCA Umbrella's group
16 hours ago
Katie Clare replied to Amanda Herrick's discussion Nipple Tattoos. Mon 19th March 2012 in the group Reconstruction Photos
16 hours ago
Katie Clare replied to Helen Burnop's discussion PBM (nipple sparing) with expander impants then silicone implants - Martin Jones, McIndoe Surgical Centre, East Grinstead in the group Reconstruction Photos
17 hours ago
Katie Clare replied to Rebecca Allen's discussion PBM Direct to implant using Strattice (Non- Nipple Sparing) in the group Reconstruction Photos
17 hours ago
Katie Clare replied to Rian's discussion Delayed Reconstruction 2 and a half years after PBM with Tissue Expanders. in the group Reconstruction Photos
17 hours ago
Katie Clare replied to Caroline (Network Administrator)'s discussion 3D Nipple Tattoos in the group Reconstruction Photos
17 hours ago
Katie Clare joined BRCA Umbrella's group
17 hours ago
Katie Clare added a discussion to the group Screening/Surveillance Only
17 hours ago
Katie Clare joined Caroline (Network Administrator)'s group
17 hours ago
 

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Forum

Fallopian tube removal only?

Started by Natalie in Preventative Surgery. Last reply by Natalie 4 hours ago. 2 Replies

Hi Everyone. I'm new to this group. I have a BRCA2 mutation and had a nipple sparing, direct implants surgery last year. I'm 37 and have the option now of participating in a trial to have my fallopian tubes ONLY removed. Has anyone else had this…Continue

Flat - Any photos?

Started by Katie Clare in Preventative Surgery. Last reply by Natalie 4 hours ago. 1 Reply

HelloThis is my first visit to BRCA Umbrella and I have been busy commenting on lots of posts and exploring everywhere - so sorry for temporarily taking over the forum homepage!I am considering going flat and would be interested to see any photos of…Continue

New here - anybody not had prophylactic mastectomy?

Started by Christine Lynch in New here? Why not introduce yourself... Last reply by Katie Clare 16 hours ago. 3 Replies

Hellomy name is Christine and I'm BRCA1 positive.  I'm 47 (eek!) and have had the BSO 4 years ago.  Fortunately I haven't had any major menopausal effects but I started taking raloxifene 2 years ago to build bone density as I was found to have…Continue

Breast Surgeon recommendation

Started by Karen Ejdelman in Preventative Surgery. Last reply by Katie Clare 16 hours ago. 17 Replies

Hi my name is Karen, I am new to this group. I am a BRCA 1 carrier and i am meeting with my genetics counsellor to discuss my options in a few days. I live in London. Please anyone recommend a good breast surgeon? Many ThanksContinue

Tattoo Artist recommendations...

Started by Sam Carroll in I need advice, have a question, can you help?. Last reply by Katie Clare 16 hours ago. 1 Reply

Do you have any recommendations for mastectomy tattoo artists? I can find loads in the US but none in the UK!ThanksSamContinue

Female hormones key to breast and ovarian cancer in BRCA gene carriers

Started by Caroline (Network Administrator) in Cancer and the BRCA gene. Last reply by Katie Clare 17 hours ago. 9 Replies

Here are two links to some very interesting research that my Consultant Professor Usha Menon is working on.  It is looking at the link between female hormones and ovarian and breast cancer in BRCA gene carriers.  I will hopefully be working with her…Continue

Tags: hormones

Hey I'm new - interested in finding out more 'natural' preventative measures and ages for preventative surgery

Started by Hayley in New here? Why not introduce yourself... Last reply by Katie Clare on Thursday. 5 Replies

Hey everyone, I'm new to the group and recently found out I am a carrier of the BRCA 1 mutation. I lost my Mum to Ovarian cancer when she was 44 and we found out last year that she was also a carrier of the mutation (she'd donated blood to Oxford…Continue

Shortage of Genetic Counsellors due to immigration rules

Started by Julie Vigers in News & Articles from the media. Last reply by Sophie Giles on Wednesday. 1 Reply

Hello EveryoneI wondered if there is anything people in this community would like to do in response to the shortage of genetic counsellors unable to get work visas,…Continue

Pain and now a lump in my armpit

Started by Heather in Preventative Surgery. Last reply by Heather May 18. 2 Replies

Hello all, looking for some advice if possible please? I have the brca1 gene and had bilateral surgery with reconstruction in July 2017. Since then recovery has been good. I'e got general numbness across both breasts but I do get the shooting pains…Continue

Nipple question

Started by Matilda in Preventative Surgery. Last reply by Julianne May 7. 5 Replies

Evening everyone. I would like to know how much feeling, if any, you have left in your nipples after nipple-sparing mastectomy? Idea of breasts feeling 'numb' puts me off surgery more than anything. I found out I have BRCA1 a year ago, and feel no…Continue

 
 
 
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