BRCA Umbrella - The BRCA Gene and You

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Nicole updated their profile
Thursday
Dawn Maddock updated their profile
Thursday
Caroline (Network Administrator) left a comment for Lisa
Thursday
Profile IconLisa, Janet Storrier, Maureen Gebo and 3 more joined BRCA Umbrella - The BRCA Gene and You
Thursday
Caroline (Network Administrator) left a comment for Janet Storrier
Thursday
Caroline (Network Administrator) left a comment for Maureen Gebo
Thursday
Caroline (Network Administrator) left a comment for Dawn Maddock
Thursday
Caroline (Network Administrator) left a comment for Karine Luguet
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Caroline (Network Administrator) left a comment for Charlotte Hiller
Thursday
Caroline Simms replied to Caroline Simms's discussion Mastectomy & ovaries out at same time? in the group UK - BRCA Support Group
Wednesday
Caroline Simms replied to Caroline Simms's discussion Mastectomy & ovaries out at same time? in the group UK - BRCA Support Group
Wednesday
Christine Lynch posted a discussion
Wednesday
Christine Lynch replied to Tanya Palmer's discussion Offered Tamoxifen as preventative measure.
Wednesday
Lisa France (Glasgow Co-ord) updated their profile
Monday
Liz posted a discussion
Monday
Alice Sullivan replied to Caroline Simms's discussion Mastectomy & ovaries out at same time? in the group UK - BRCA Support Group
May 22
Matilda replied to Matilda's discussion BRCA1, new diagnosis
May 19
Susan Linda Hart posted a discussion
May 19
Susan Linda Hart updated their profile
May 19
anne martin replied to Caroline Simms's discussion Mastectomy & ovaries out at same time? in the group UK - BRCA Support Group
May 18
 

WHEN YOU JOIN BRCA UMBRELLA, YOU WILL BE SENT AN EMAIL ASKING FOR FURTHER DETAILS. PLEASE LOOK FOR IT IN YOUR SPAM FOLDER IF IT DOESN'T APPEAR IN YOUR INBOX.

If you wish to contact BRCA Umbrella for media/other enquiries, please email caroline.presho@brcaumbrella.org.uk

Reconstruction Photos can be found HERE

A useful factfile full of abbreviations and jargon-busting definitions can be found HERE

Forum

New here - anybody not had prophylactic mastectomy?

Started by Christine Lynch in New here? Why not introduce yourself.. on Wednesday. 0 Replies

Hellomy name is Christine and I'm BRCA1 positive.  I'm 47 (eek!) and have had the BSO 4 years ago.  Fortunately I haven't had any major menopausal effects but I started taking raloxifene 2 years ago to build bone density as I was found to have…Continue

Offered Tamoxifen as preventative measure.

Started by Tanya Palmer in Preventative Surgery. Last reply by Christine Lynch on Wednesday. 2 Replies

Hi, I'm brca2 positive, have had a bso after diagnosis, currently I'm having breast screening yearly but have chosen not to have a mastectomy as a preventative measure, my surgeon has recently suggested taking Tamoxifen for a minimum of 5 years,…Continue

HRT Yes or No???

Started by Liz in New here? Why not introduce yourself.. on Monday. 0 Replies

Thanks for reading!New to this site and new member of the genetics quirks club.Heading for ovary and tube removal towards the end of July as a first step as BRCA 2 positive.  Keeping other options on hold at the moment.No-one can give me a direction…Continue

BRCA1, new diagnosis

Started by Matilda in New here? Why not introduce yourself... Last reply by Matilda May 19. 2 Replies

Hi everyone, Glad to have found this forum, thanks for all your posts! I found out I have BRCA1 a few months ago. I'm 35 with a 4-year-old son, I live in London. I had stage 3c bowel cancer when I was 30 (when I was pregnant), my doctors think that…Continue

New member but I am not sure I am posting in the right place. Sorry if I am wrong

Started by Susan Linda Hart in New here? Why not introduce yourself.. May 19. 0 Replies

I have had three cancers - malignant melanoma, breast and ovarian but last year I also then had a new pelvic mass so another operation which turned out to be two major operations as the first one left me with two holes in my bladder  The second…Continue

What now?

Started by Kerryn McGee in Preventative Surgery. Last reply by Caroline Simms May 8. 3 Replies

When i first found out i carried the Braca2 Gene i was 18 years old. Now, Nearly 4 years on, i'm married & i have 2 beautiful children. The decision i made at the age of 18 was to leave surgery for now & create my family. Since having my 2nd…Continue

Where are you??

Started by Caroline (Network Administrator) in New here? Why not introduce yourself... Last reply by Faye McCrory May 7. 98 Replies

I have set up a couple of Zee Maps which will make it easier for us to see where everyone is located and arrange some local support groups.For UK residents - Go to …Continue

Hi I'm new, BRCA1 - recently found out

Started by Caroline Simms in New here? Why not introduce yourself... Last reply by Caroline Simms May 5. 4 Replies

Hi ladies,I'm so glad this group exists,and bravo to the volunteers giving up their time to run it. I found out I had BRCA1 mutation just a few weeks ago after my cousin was diagnosed with breast cancer and got tested for the gene. My Mum died of…Continue

Preventative surgery

Started by Victoria Willmott in Preventative Surgery. Last reply by Victoria Willmott Apr 30. 3 Replies

Hello. I am brand new to this site so not sure if I am even posting in the right area. A year ago I was diagnosed with stage 3C ovarian cancer. Chemo started in April and following three sessions I had my Total Abdominal Hyterectomy, omentum removed…Continue

double mystecomy

Started by Zoe in Preventative Surgery Apr 29. 0 Replies

Hi Everyone ,I've recently been into hospital for risk reducing surgery with implants ,but I got an infection 2 weeks after having the surgery and had to have emergency surgery to remove both implants .I'm now 10 weeks on and going in for fat…Continue

 
 
 
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