BRCA Umbrella - The BRCA Gene and You

Latest Activity

Jasmine Slater updated their profile
Saturday
Rose Bloom posted a blog post
Friday
Rose Bloom posted a discussion
Friday
mamaoffour updated their profile
Jan 31
mamaoffour posted a discussion
Jan 31
Sarah replied to Alison's discussion surgical menopause
Jan 11
Alison replied to Alison's discussion surgical menopause
Jan 11
Sarah replied to Alison's discussion surgical menopause
Jan 11
Sarah replied to Bel's discussion Has anyone well into their 40s NOT had ovaries removed yet?
Jan 11
Elaine updated their profile
Jan 10
Kazz replied to Hayley's discussion Hey I'm new - interested in finding out more 'natural' preventative measures and ages for preventative surgery
Jan 2
Kazz replied to Heather's discussion Pain and now a lump in my armpit
Dec 31, 2018
lorraine Owen posted a discussion
Nov 14, 2018
Hilary Bull joined Caroline (Network Administrator)'s group
Oct 29, 2018
Alison Self posted a discussion
Oct 4, 2018
LeslieB commented on Faye McCrory's group Bristol and South West Meet Up
Sep 28, 2018
Gill Parish commented on Faye McCrory's group Bristol and South West Meet Up
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Faye McCrory commented on Faye McCrory's group Bristol and South West Meet Up
Sep 25, 2018
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Sep 7, 2018
Gill Parish commented on Faye McCrory's group Bristol and South West Meet Up
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A useful factfile full of abbreviations and jargon-busting definitions can be found HERE

Forum

STOP Workplace Cancer Disability Discrimination

Started by Rose Bloom in Waiting Room on Friday. 0 Replies

My fellow BRCA ladies,After breast cancer in 2016 with chemo and extensive surgery, followed by BSO in 2017 I on top had to deal with the discriminatory conduct of my former employer. I will be heard in the Employment Tribunal in London in April and…Continue

PBM. Check. Surgery to remove ovaries - Can't bring myself to do it.

Started by mamaoffour in Preventative Surgery Jan 31. 0 Replies

Hi everyone, I haven't been on here for some time for a number of reasons but absolutely love the community support and feel of this place and am so grateful to have access to it.I'll start with a short recap of the past 5 years (pls bear with me)We…Continue

surgical menopause

Started by Alison in Preventative Surgery. Last reply by Sarah Jan 11. 6 Replies

Hi everyone, my name is Alison and I was tested positive for BRCA 1 about 8 years ago. it didn't come as a big surprise to me given an extensive family history. I had regular MRI scans but decided to go ahead with the pbm 2 years ago.I had this done…Continue

Has anyone well into their 40s NOT had ovaries removed yet?

Started by Bel in Surveillance Screening or Surgery?. Last reply by Sarah Jan 11. 5 Replies

Hello,I'm new to this forum: had Triple neg BC in 2002 aged 31, and only years later, after  I was in remission, found out I carry the BRCA1 mutation. I'm having my breast op in December. But, despite being in my mid 40s, I am still extremely…Continue

Hey I'm new - interested in finding out more 'natural' preventative measures and ages for preventative surgery

Started by Hayley in New here? Why not introduce yourself... Last reply by Kazz Jan 2. 16 Replies

Hey everyone, I'm new to the group and recently found out I am a carrier of the BRCA 1 mutation. I lost my Mum to Ovarian cancer when she was 44 and we found out last year that she was also a carrier of the mutation (she'd donated blood to Oxford…Continue

Pain and now a lump in my armpit

Started by Heather in Preventative Surgery. Last reply by Kazz Dec 31, 2018. 7 Replies

Hello all, looking for some advice if possible please? I have the brca1 gene and had bilateral surgery with reconstruction in July 2017. Since then recovery has been good. I'e got general numbness across both breasts but I do get the shooting pains…Continue

BRCA 2 - ovary surveillance

Started by lorraine Owen in I need advice, have a question, can you help? Nov 14, 2018. 0 Replies

HiI’m BRCA 2 and had mastectomy with tummy fat reconstruction 7 years ago. I am now 45 and it’s time to think about my ovaries. I’ve been enrolled onto a blood test surveillance scheme but my first blood test has come back with .higher levels than…Continue

BRCA2 and Oesophgeal cancer

Started by Alison Self in I need advice, have a question, can you help? Oct 4, 2018. 0 Replies

Anyone know if there any research going on to link BRCA and oesophgeal cancer?Continue

Contraception and BRCA gene!

Started by Hayley in I need advice, have a question, can you help? Aug 9, 2018. 0 Replies

Hi everyone!Has anyone here done any research on the most suitable form of contraception for those with a BRCA mutation? I’m looking for some advice!Having been on the pill for many years, I came off a couple of years ago to have a baby. Now my…Continue

Tattoo Artist recommendations...

Started by Sam Carroll in I need advice, have a question, can you help?. Last reply by Zara Aug 6, 2018. 4 Replies

Do you have any recommendations for mastectomy tattoo artists? I can find loads in the US but none in the UK!ThanksSamContinue

 
 
 
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