BRCA Umbrella - The BRCA Gene and You

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Tanya Palmer replied to Charlotte Hiller's discussion New here, and newly found out
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Lauren Mailich replied to Lauren Mailich's discussion 1 year anniversary
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Paula K replied to Paula K's discussion Please Help Me Find A Post-Surgical Bra!!!
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Kristi Knox replied to Lauren Mailich's discussion 1 year anniversary
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A useful factfile full of abbreviations and jargon-busting definitions can be found HERE

Forum

New here, and newly found out

Started by Charlotte Hiller in New here? Why not introduce yourself... Last reply by Tanya Palmer yesterday. 3 Replies

Hello,I had my results from genetic testing, and unfortunately tested positive for a mutation on the BRCA 2 gene.I am still a bit in shock if I'm honest - I was really hoping that this would not be the case as I already have a number of other health…Continue

1 year anniversary

Started by Lauren Mailich in Preventative Surgery. Last reply by Lauren Mailich yesterday. 2 Replies

Hi all,Just my thoughts on paper.My 1 year boob anniversary rolled around last week. What a journey it has been. From my first meeting with my wonderful surgeon who listened to all my worries and concerns about the surgery and what recovery would be…Continue

Tags: #difficultspecialjourney, #strong

Please Help Me Find A Post-Surgical Bra!!!

Started by Paula K in I need advice, have a question, can you help?. Last reply by Paula K yesterday. 4 Replies

So I am having my surgery this coming Tuesday, July 25th - double mastectomy with nipple sparring reconstructive surgery using implants. I have been so busy that I put off buying a post-surgical bra and now I'm panicking.My breast care nurse says…Continue

Tags: bra, Post-surgical

Breast Surgeon recommendation

Started by Karen Ejdelman in Preventative Surgery. Last reply by Anna Jul 15. 12 Replies

Hi my name is Karen, I am new to this group. I am a BRCA 1 carrier and i am meeting with my genetics counsellor to discuss my options in a few days. I live in London. Please anyone recommend a good breast surgeon? Many ThanksContinue

Ovary removal - feel wobbly

Started by Janine in Preventative Surgery. Last reply by Victoria Hardy Jul 15. 1 Reply

Hi all,I'm a new member. I'm 41, BRCA1. single parent with 8 yr old and new boyfriendI had hysterectomy with ovary removal 2 weeks ago today. Physically I feel fine...up and about and off painkillers. Emotionally I am a bit all over the show. I'm on…Continue

Where are you??

Started by Caroline (Network Administrator) in New here? Why not introduce yourself... Last reply by Jo Jul 13. 101 Replies

I have set up a couple of Zee Maps which will make it easier for us to see where everyone is located and arrange some local support groups.For UK residents - Go to …Continue

IVF PGD

Started by Faye McCrory in Company Corner..Confused? Sad? Angry? Excited? Happy?. Last reply by Faye McCrory Jul 13. 3 Replies

Hey team,Anyone else doing/done ivf with PGD/PGS?I'm currently going through the process would be good to talk it through with others who are doing it/have done it!Faye.Continue

Fat transfer anybody?

Started by sofia segal in Preventative Surgery. Last reply by sofia segal Jul 5. 2 Replies

Hi there, I had a preventative double mastectomy with reconstruction at the Royal Marsden last October, and I have been very happy I did it. I really mean it. My life is much better than before, and I have no pain. The only restriction of movement I…Continue

Hi I'm new..

Started by Claudine Roche-Wilson in New here? Why not introduce yourself... Last reply by Claudine Roche-Wilson Jul 5. 4 Replies

Good morning, another day on planet earth :-)I have been taking great comfort from all your posts regarding BSO, Hysterectomy, HRT etc.I meet with my gynae consultant today as he plans to perform a total abdominal hysterectomy next month. I have…Continue

Bowen's Disease

Started by Clare Tressler in I need advice, have a question, can you help? Jun 22. 0 Replies

My gp is referring me to dermatology because she thinks I may have Bowen's Disease (pre-skin cancerous growth).  As I'm a BRCA2 with the possibility of increased risk of skin cancer, I was just wondering whether any other BRCA2s have had something…Continue

 
 
 
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