BRCA Umbrella - The BRCA Gene and You

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WHEN YOU JOIN BRCA UMBRELLA, YOU WILL BE SENT AN EMAIL ASKING FOR FURTHER DETAILS. PLEASE LOOK FOR IT IN YOUR SPAM FOLDER IF IT DOESN'T APPEAR IN YOUR INBOX.

If you wish to contact BRCA Umbrella for media/other enquiries, please email caroline.presho@brcaumbrella.org.uk

Reconstruction Photos can be found HERE

A useful factfile full of abbreviations and jargon-busting definitions can be found HERE

Forum

Post Op Daily Activities

Started by Paula K in I need advice, have a question, can you help? Aug 3. 0 Replies

Hi everyone. Just over one week ago I had nipple sparing double mastectomy with immediate reconstructive surgery using implants and adm. My breasts were also reduced from a DD to a C and the nipples were moved upwards. The drains were removed 5 days…Continue

Nipple Worries :/

Started by Paula K in I need advice, have a question, can you help? Aug 3. 0 Replies

H everyone. Just over one week ago I had a nipple sparing double mastectomy with immediate reconstructive surgery using implants and adm. My breasts were also reduced in size and nipples were moved up. I noticed straight away that the left nipple…Continue

Hi everyone

Started by Ciara Sheridan in Preventative Surgery. Last reply by Lisa Robertson Jul 31. 1 Reply

New here... got diagnosed with BRCA 2 a week before my 37th birthday in June this year. Have more or less made up my mind that I will have both the preventative surgeries. I have three Q&A appointments with various consultants between now and…Continue

HRT Yes or No???

Started by Liz in New here? Why not introduce yourself... Last reply by Annie-Lou Jul 27. 2 Replies

Thanks for reading!New to this site and new member of the genetics quirks club.Heading for ovary and tube removal towards the end of July as a first step as BRCA 2 positive.  Keeping other options on hold at the moment.No-one can give me a direction…Continue

New here, and newly found out

Started by Charlotte Hiller in New here? Why not introduce yourself... Last reply by Annie-Lou Jul 27. 4 Replies

Hello,I had my results from genetic testing, and unfortunately tested positive for a mutation on the BRCA 2 gene.I am still a bit in shock if I'm honest - I was really hoping that this would not be the case as I already have a number of other health…Continue

1 year anniversary

Started by Lauren Mailich in Preventative Surgery. Last reply by Jean Jul 27. 4 Replies

Hi all,Just my thoughts on paper.My 1 year boob anniversary rolled around last week. What a journey it has been. From my first meeting with my wonderful surgeon who listened to all my worries and concerns about the surgery and what recovery would be…Continue

Tags: #difficultspecialjourney, #strong

Please Help Me Find A Post-Surgical Bra!!!

Started by Paula K in I need advice, have a question, can you help?. Last reply by Paula K Jul 24. 4 Replies

So I am having my surgery this coming Tuesday, July 25th - double mastectomy with nipple sparring reconstructive surgery using implants. I have been so busy that I put off buying a post-surgical bra and now I'm panicking.My breast care nurse says…Continue

Tags: bra, Post-surgical

Breast Surgeon recommendation

Started by Karen Ejdelman in Preventative Surgery. Last reply by Anna Jul 15. 12 Replies

Hi my name is Karen, I am new to this group. I am a BRCA 1 carrier and i am meeting with my genetics counsellor to discuss my options in a few days. I live in London. Please anyone recommend a good breast surgeon? Many ThanksContinue

Ovary removal - feel wobbly

Started by Janine in Preventative Surgery. Last reply by Victoria Hardy Jul 15. 1 Reply

Hi all,I'm a new member. I'm 41, BRCA1. single parent with 8 yr old and new boyfriendI had hysterectomy with ovary removal 2 weeks ago today. Physically I feel fine...up and about and off painkillers. Emotionally I am a bit all over the show. I'm on…Continue

Where are you??

Started by Caroline (Network Administrator) in New here? Why not introduce yourself... Last reply by Jo Jul 13. 101 Replies

I have set up a couple of Zee Maps which will make it easier for us to see where everyone is located and arrange some local support groups.For UK residents - Go to …Continue

 
 
 
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