BRCA Umbrella - The BRCA Gene and You

Latest Activity

Michelle Bryson replied to Michelle Bryson's discussion Pain starting 2 1/2 years post PBM with reconstruction
Oct 6
snow replied to Michelle Bryson's discussion Pain starting 2 1/2 years post PBM with reconstruction
Oct 5
snow posted a discussion
Oct 4
snow updated their profile
Oct 4
Michelle Bryson updated their profile
Sep 10
Michelle Bryson posted a discussion
Sep 10
Elizabeth Stone replied to Elizabeth Stone's discussion Mastectomy - over 50
Sep 9
Suzy replied to Elizabeth Stone's discussion Mastectomy - over 50
Sep 9
Dotty replied to Dotty's discussion PALB2
Jul 5
Angela joined Karen Cotton (Admin)'s group
Jul 2
Nicole Drapaniotis replied to Caroline (Network Administrator)'s discussion Where are you??
Jun 26
Dotty posted a discussion
Jun 16
Nicole Drapaniotis replied to lorraine Owen's discussion BRCA 2 - ovary surveillance
Jun 3
Hilary Bull replied to Hilary Bull's discussion Meeting up or having a buddy in the group Hertfordshire/North London and surrounding areas meet-up
May 7
Susan Linda Hart replied to Hilary Bull's discussion Meeting up or having a buddy in the group Hertfordshire/North London and surrounding areas meet-up
May 7
Hilary Bull joined BRCA Umbrella's group
May 7
Hilary Bull added a discussion to the group Hertfordshire/North London and surrounding areas meet-up
May 7
 

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Reconstruction Photos can be found HERE

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Forum

Pain starting 2 1/2 years post PBM with reconstruction

Started by Michelle Bryson in I need advice, have a question, can you help?. Last reply by Michelle Bryson Oct 6. 2 Replies

Hi All,I had a PBM with implant reconstruction (under muscle layer) and have had no problems at all up until now 2 and a half years later!!It started with a swollen feeling in both breasts and a slight increase in temperature. This lasted for a…Continue

Tags: nerve pain

how does mastectomy reduce risk?

Started by snow in Preventative Surgery Oct 4. 0 Replies

Hi everyone :)I'm sorry if this sounds very obvious I had a preventative mastectomy @ 33 years old and actually still don't understand how my risk has been reduced :/ Unless I'm understanding the whole process incorrectly ( which is I'm sure very…Continue

Mastectomy - over 50

Started by Elizabeth Stone in Preventative Surgery. Last reply by Elizabeth Stone Sep 9. 12 Replies

Hello, I'm new here, I have a strong family history of Breast and Ovarian cancer and I am BRCA1positive. I have recently had a BSO and have an appointment to discuss a mastectomy. I was wondering if there are any other older women 50+ who are…Continue

PALB2

Started by Dotty in Waiting Room. Last reply by Dotty Jul 5. 1 Reply

so tomorrow we get the results of dad’s palb2 test. I can not find anything on here about PALB2 and wondered if anybody else has any experience?Previously, through genetics, I had been categorised as being high risk, due to significant family…Continue

Where are you??

Started by Caroline (Network Administrator) in New here? Why not introduce yourself... Last reply by Nicole Drapaniotis Jun 26. 105 Replies

I have set up a couple of Zee Maps which will make it easier for us to see where everyone is located and arrange some local support groups.For UK residents - Go to …Continue

BRCA 2 - ovary surveillance

Started by lorraine Owen in I need advice, have a question, can you help?. Last reply by Nicole Drapaniotis Jun 3. 1 Reply

HiI’m BRCA 2 and had mastectomy with tummy fat reconstruction 7 years ago. I am now 45 and it’s time to think about my ovaries. I’ve been enrolled onto a blood test surveillance scheme but my first blood test has come back with .higher levels than…Continue

PBM. Check. Surgery to remove ovaries - Can't bring myself to do it.

Started by mamaoffour in Preventative Surgery. Last reply by mamaoffour Mar 25. 3 Replies

Hi everyone, I haven't been on here for some time for a number of reasons but absolutely love the community support and feel of this place and am so grateful to have access to it.I'll start with a short recap of the past 5 years (pls bear with me)We…Continue

Preventative removal of ovaries due to BRCA1

Started by Nicole Drapaniotis in Preventative Surgery Mar 19. 0 Replies

Hi,I found out I have the BRCA1 mutation in 2006. I had the preventative mastectomy in Mar 2007. My family history of breast cancer is huge but I was under the impression that none of my aunties/cousins had ovarian cancer. I have 1 uncle who had…Continue

STOP Workplace Cancer Disability Discrimination

Started by Rose Bloom in Waiting Room Feb 15. 0 Replies

My fellow BRCA ladies,After breast cancer in 2016 with chemo and extensive surgery, followed by BSO in 2017 I on top had to deal with the discriminatory conduct of my former employer. I will be heard in the Employment Tribunal in London in April and…Continue

surgical menopause

Started by Alison in Preventative Surgery. Last reply by Sarah Jan 11. 6 Replies

Hi everyone, my name is Alison and I was tested positive for BRCA 1 about 8 years ago. it didn't come as a big surprise to me given an extensive family history. I had regular MRI scans but decided to go ahead with the pbm 2 years ago.I had this done…Continue

 
 
 
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