BRCA Umbrella - The BRCA Gene and You


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A useful factfile full of abbreviations and jargon-busting definitions can be found HERE


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    Lack of blood to part of the breast post surgery.

    Started by Nikki in Preventative Surgery. Last reply by Sally phillips on Wednesday. 4 Replies

    Hello.. 4 weeks post surgery and only just been to see my consultant, so annoyed because, part of my right side has a black mark (lack of blood to the area) and if I was to knock it..I would expose my implant and they will need to take it out.Just…Continue


    Started by Charlotte Gilmour in I need advice, have a question, can you help?. Last reply by Tracy Kewley Nov 21. 7 Replies

    Just wondering if anyone out there with private health Insurance found they were covered when it comes to preventative surgery ? Seems a grey area as they say you are not actualy ill and yet you will cos them a lot more money if you get ill and your…Continue

    Where are you??

    Started by Caroline (Network Administrator) in New here? Why not introduce yourself... Last reply by Liz Hartley Nov 18. 86 Replies

    I have set up a couple of Zee Maps which will make it easier for us to see where everyone is located and arrange some local support groups.For UK residents - Go to …Continue

    Anyone taking Livial please?

    Started by Shirley T in Preventative Surgery Nov 18. 0 Replies

    I'm 3 months post risk reducing oophorectomy and hysterectomy.  I'm really struggling with dreadful hot flushes and have been offered Livial pending my risk reducing mastectomy.  Has anyone out there tried it please?  If so can you give me your…Continue

    Surgery and RoAccutane

    Started by Michaela Jones in I need advice, have a question, can you help?. Last reply by Kerry Johnson Nov 12. 1 Reply

    Bit of a unique one but wondering if any of you lovelies have had any experience with the drug RoAccutane? I have suffered with acne for 5 years... brought on by a progesterone contraceptive (yay BRCA!) and my GP has finallllyyyyy offered to refer…Continue

    Tags: Surgery, RoAccutane, Contraception, Acne

    Post Mastectomy Cysts

    Started by Karen Cotton (Admin) in Preventative Surgery. Last reply by Karen Cotton (Admin) Nov 9. 3 Replies

    Hello everyoneI had my mastectomy in March, and all has been well, except over the last month one breast has developed 7 cysts. Obviously on finding these lumps I panicked and expected the worst, but ultrasounds and a biopsy have concluded it's…Continue

    Screening/referral/consultant/surgery - very stressful!

    Started by Kerry Johnson in Preventative Surgery. Last reply by Kerry Johnson Nov 8. 15 Replies

    Has anyone else experienced problems in regards to what the procedure is to have a PBM? It feels like both myself and my mum have had to sort out ALL the appointments ourselves to basically get in the system to get the ball rolling!We were advised…Continue

    in between

    Started by lori yacko in Preventative Surgery. Last reply by lori yacko Nov 8. 9 Replies

    I am 6 weeks after surgery mt expanders should start filling this week very nervous they already seem too big poking out middle of chest and still can't move raise my arms much wondering if anyone can tell me how long this pain in chest and hurt…Continue

    34 and having second thoughts - hormone change depression

    Started by susanna in Preventative Surgery. Last reply by Caroline shelton Nov 8. 5 Replies

    Hello everybodyI found out last year I am BRCA1 positive. My mum was died of ovarian cancer aged 40, my maternal grandmother died of ovarian cancer aged 63 and grandmothers sister died of breast cancer aged 36. I am 34 and have 3 young children.…Continue

    workshop - make and fit your own post-mastectomy bra

    Started by Karen Cotton (Admin) in Preventative Surgery. Last reply by Karen Cotton (Admin) Oct 29. 5 Replies

    Hello LadiesLocal to me (Staffordshire) there is an amazing sewing academy that offers 'make your own bra' workshops.Having been frustrated at the lack of nice non-underwire bras available I contacted the lady and enquired.Normally the course she…Continue


    Blog Posts


    Posted by Lesley Roche on November 20, 2015 at 20:18 1 Comment

    Not happy following surgery

    Posted by Liz Hartley on November 18, 2015 at 22:44 2 Comments

    All about me!

    Posted by Krystal Olbon on November 11, 2015 at 4:25 1 Comment

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