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Lisa France (Glasgow Co-ord) commented on Caroline (Network Administrator)'s group Glasgow Get-Togethers
WHEN YOU JOIN BRCA UMBRELLA, YOU WILL BE SENT AN EMAIL ASKING FOR FURTHER DETAILS. PLEASE LOOK FOR IT IN YOUR SPAM FOLDER IF IT DOESN'T APPEAR IN YOUR INBOX.
If you wish to contact BRCA Umbrella for media/other enquiries, please email caroline.presho@brcaumbrella.org.uk
Reconstruction Photos can be found HERE
A useful factfile full of abbreviations and jargon-busting definitions can be found HERE
Forum
Bowen's Disease
Started by Clare Tressler in I need advice, have a question, can you help? on Thursday. 0 Replies 0 Likes
My gp is referring me to dermatology because she thinks I may have Bowen's Disease (pre-skin cancerous growth). As I'm a BRCA2 with the possibility of increased risk of skin cancer, I was just wondering whether any other BRCA2s have had something…Continue
Hi, I'm new...and not sure what to do!
Started by Ellen Schubert in New here? Why not introduce yourself... Last reply by Susan Rothstein Jun 19. 3 Replies 1 Like
Hello,I've recently found out that I'm BRCA1 positive and feel like my life's been turned upside down! I'm really struggling to get help/advice because I had my genetics test done in my home country of NZ when I was there on holiday in March. I…Continue
Breast Surgeon recommendation
Started by Karen Ejdelman in Preventative Surgery. Last reply by Antonella Novello Jun 15. 8 Replies 0 Likes
Hi my name is Karen, I am new to this group. I am a BRCA 1 carrier and i am meeting with my genetics counsellor to discuss my options in a few days. I live in London. Please anyone recommend a good breast surgeon? Many ThanksContinue
Support for Prof Justin Stebbing posting with Ester Fester
Started by Alison Dagul in Preventative Surgery Jun 14. 0 Replies 0 Likes
*Admin please delete if not allowed*As some of you may be aware, Prof Justin Stebbing has recently had his funding removed by most major insurers therefore we are all being told to find a new doctor. We won't go into the details here as it's not…Continue
New here - anybody not had prophylactic mastectomy?
Started by Christine Lynch in New here? Why not introduce yourself... Last reply by Christine Lynch Jun 14. 2 Replies 0 Likes
Hellomy name is Christine and I'm BRCA1 positive. I'm 47 (eek!) and have had the BSO 4 years ago. Fortunately I haven't had any major menopausal effects but I started taking raloxifene 2 years ago to build bone density as I was found to have…Continue
Fat transfer anybody?
Started by sofia segal in Preventative Surgery Jun 12. 0 Replies 0 Likes
Hi there, I had a preventative double mastectomy with reconstruction at the Royal Marsden last October, and I have been very happy I did it. I really mean it. My life is much better than before, and I have no pain. The only restriction of movement I…Continue
Hi I'm new..
Started by Claudine Roche-Wilson in New here? Why not introduce yourself... Last reply by Caroline Simms Jun 7. 1 Reply 1 Like
Good morning, another day on planet earth :-)I have been taking great comfort from all your posts regarding BSO, Hysterectomy, HRT etc.I meet with my gynae consultant today as he plans to perform a total abdominal hysterectomy next month. I have…Continue
Preventative surgery
Started by Victoria Willmott in Preventative Surgery. Last reply by Claudine Roche-Wilson May 29. 4 Replies 0 Likes
Hello. I am brand new to this site so not sure if I am even posting in the right area. A year ago I was diagnosed with stage 3C ovarian cancer. Chemo started in April and following three sessions I had my Total Abdominal Hyterectomy, omentum removed…Continue
HRT Yes or No???
Started by Liz in New here? Why not introduce yourself... Last reply by Claudine Roche-Wilson May 29. 1 Reply 0 Likes
Thanks for reading!New to this site and new member of the genetics quirks club.Heading for ovary and tube removal towards the end of July as a first step as BRCA 2 positive. Keeping other options on hold at the moment.No-one can give me a direction…Continue
Offered Tamoxifen as preventative measure.
Started by Tanya Palmer in Preventative Surgery. Last reply by Christine Lynch May 24. 2 Replies 1 Like
Hi, I'm brca2 positive, have had a bso after diagnosis, currently I'm having breast screening yearly but have chosen not to have a mastectomy as a preventative measure, my surgeon has recently suggested taking Tamoxifen for a minimum of 5 years,…Continue
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