BRCA Umbrella - The BRCA Gene and You


If you wish to contact BRCA Umbrella for media/other enquiries, please email

Reconstruction Photos can be found HERE

A useful factfile full of abbreviations and jargon-busting definitions can be found HERE


Just a quick introduction

Started by Chelsea Easton in Preventative Surgery. Last reply by Laura Friend on Wednesday. 3 Replies

Hi everyone,Just a quick introduction. I'm Chelsea, I live in the northeast of England. I'm soon to turn 25 on the 12th of July. I inherited the BRCA 1 gene from my mam who sadly lost her mother and older sister to both breast and ovarian cancer at…Continue

Pain clinic... Help!!

Started by Laura Friend in I need advice, have a question, can you help?. Last reply by Laura Friend on Wednesday. 2 Replies

I've just had my appointment with my consultant today six weeks post op (second op for investigation with an infection found so my implant was exchanged) he still seems unsure what is going on as my symptoms are still the same as before and I feel…Continue

Results today

Started by Louise in I need advice, have a question, can you help? on Tuesday. 0 Replies

Hi everyone,I got my results today, I have the BRCA 1 mutation, there was a strong family history so I had kind of prepared my self for it however I'm still feeling very emotional at this result :(.I'm 24 and lost my mom nearly 4 years ago to…Continue

Hi, I'm new...

Started by Heather Saunders in New here? Why not introduce yourself... Last reply by Sarah Kemble Jun 20. 7 Replies

Hi, I'm new to all this, so not sure what I'm doing, please bear with me...I found out I have the BRCA1 gene on 1st April this year, a day before the 1st anniversary of my mum's death from ovarian cancer. I thought the letter was my mum telling me…Continue

Anyone have a baby after surgery ?

Started by Jennifer r in Preventative Surgery. Last reply by Jennifer r Jun 19. 4 Replies

Hello looking to have a chat with someone that has had a baby after having a double mastectomy

Implants or no implants??

Started by Orla Gallagher in I need advice, have a question, can you help?. Last reply by Orla Gallagher Jun 17. 2 Replies

Hi I was diagnosed with breast cancer 9 years ago when I was 32 and was was tested then for the brca gene , I tested positive for brca 1. Since then I have had a double mastectomy with reconstruction (2011) and ovaries removed (2015). In January…Continue

Life insurance for a mortgage

Started by Lorna M in Insurance. Last reply by Katie Whitehead Jun 17. 7 Replies

HI thereI have the BRCA 1 gene deformity and have lost my Mum and sister to Ovarian cancer.  My husband and I are seeking life cover for our mortgage - when I last applied for a mortgage not all of above had occurred/was known to me.I have also had…Continue

Reaserch Surgeons

Started by Sasha in Waiting Room. Last reply by Alice Sullivan Jun 17. 4 Replies

Does anyone know you research surgeons? I have been told Dr gui at the Royal Marsdon in London is good. But im not sure how to research them? Thanks.xxxx Continue

Tags: surgeons, research


Started by Fiona Kent in I need advice, have a question, can you help?. Last reply by Fiona Kent Jun 16. 2 Replies

Hi am BRCA 1 and have had breast cancer. Have been prescribed Letrozole after complaining of headaches with Tamoxifen. But have constantly acing joints and am worried about bone loss.After a double mastectomy and an op to remove my ovaries does the…Continue

mastectomy and reconstruction in London

Started by Alice Sullivan in Preventative Surgery. Last reply by Jill Mueller (Admin) Jun 16. 1 Reply

Today hasn't been a great day, so I thought I'd finally come on here and ask for some advice.I'm 42 and was diagnosed as BRCA2 in February. I've made the decision to go ahead with the mastectomy and reconstruction. I had an appointment booked in to…Continue

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