BRCA Umbrella - The BRCA Gene and You

Latest Activity

Faye McCrory joined BRCA Umbrella's group
Jul 28
Sarah Kemble posted a discussion
Apr 24
Danielle Stevens posted a discussion
Jan 5
Natalie replied to susan mackenzie's discussion Surveillance after PBM and BSO
Dec 10, 2019
Natalie replied to Natalie's discussion Fallopian tube removal only?
Dec 10, 2019
Gabby Ara replied to Natalie's discussion Fallopian tube removal only?
Dec 4, 2019
Hilary Bull replied to Ellen Schubert's discussion MRI Screening in Hertfordshire in the group Hertfordshire/North London and surrounding areas meet-up
Nov 23, 2019
Ellen Schubert replied to Ellen Schubert's discussion MRI Screening in Hertfordshire in the group Hertfordshire/North London and surrounding areas meet-up
Nov 23, 2019
Hilary Bull replied to Ellen Schubert's discussion MRI Screening in Hertfordshire in the group Hertfordshire/North London and surrounding areas meet-up
Nov 21, 2019
Ellen Schubert replied to snow's discussion how does mastectomy reduce risk?
Nov 21, 2019
Sam Carroll replied to Ellen Schubert's discussion MRI Screening in Hertfordshire in the group Hertfordshire/North London and surrounding areas meet-up
Nov 21, 2019
Ellen Schubert updated their profile
Nov 21, 2019
Ellen Schubert added a discussion to the group Hertfordshire/North London and surrounding areas meet-up
Nov 21, 2019
Ellen Schubert joined Caroline (Network Administrator)'s group
Nov 21, 2019
Jordon Creasey updated their profile
Nov 20, 2019
Jordon Creasey posted a status
"Any body know how much it would be for full comp private health insurance with the BRCA1 gene? TIA"
Nov 20, 2019
Eleanor Howie posted a discussion
Nov 19, 2019
susan mackenzie updated their profile
Nov 12, 2019
susan mackenzie posted a discussion
Nov 12, 2019
Michelle Bryson replied to Michelle Bryson's discussion Pain starting 2 1/2 years post PBM with reconstruction
Oct 6, 2019
 

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If you wish to contact BRCA Umbrella for media/other enquiries, please email caroline.presho@brcaumbrella.org.uk

Reconstruction Photos can be found HERE

A useful factfile full of abbreviations and jargon-busting definitions can be found HERE

Forum

Implant issue - 10 years post op

Started by Sarah Kemble in I need advice, have a question, can you help? Apr 24. 0 Replies

I am 10 years post double mastectomy with saline expander implants following brca1 diagnosis (no cancer). Today I noticed my right implant has deflated. To late to ring the hospital, I am under the Royal Marsden. Any issues I should be concerned…Continue

10 years post op - implant exchange

Started by Danielle Stevens in I need advice, have a question, can you help? Jan 5. 0 Replies

Hi everyone, it’s been a very long time since I’ve been on here. I’m 10 years post op in April from bilateral LD Flap Reconstruction. At the time of surgery I was told that the implants would gave to be replaced after 10 years. A few years ago they…Continue

Surveillance after PBM and BSO

Started by susan mackenzie in Preventative Surgery. Last reply by Natalie Dec 10, 2019. 1 Reply

Dear ladies I am two years post PBM and 5 yrs post BSO, I see no drs for any surveillance and was wondering if this is the norm.Although I’ve had the preventative surgery the fear of getting something has not gone away and I’m sure I would find an…Continue

Fallopian tube removal only?

Started by Natalie in Preventative Surgery. Last reply by Natalie Dec 10, 2019. 4 Replies

Hi Everyone. I'm new to this group. I have a BRCA2 mutation and had a nipple sparing, direct implants surgery last year. I'm 37 and have the option now of participating in a trial to have my fallopian tubes ONLY removed. Has anyone else had this…Continue

how does mastectomy reduce risk?

Started by snow in Preventative Surgery. Last reply by Ellen Schubert Nov 21, 2019. 1 Reply

Hi everyone :)I'm sorry if this sounds very obvious I had a preventative mastectomy @ 33 years old and actually still don't understand how my risk has been reduced :/ Unless I'm understanding the whole process incorrectly ( which is I'm sure very…Continue

Post mastectomy lingerie

Started by Eleanor Howie in New here? Why not introduce yourself.. Nov 19, 2019. 0 Replies

Hi everyoneI am a long term member but first time poster. My name is Ellie and my sister and I have the BRCA1 gene. We both underwent double mastectomies with expander reconstructions when we were 24 (8 years ago for me). Both of us have really…Continue

Pain starting 2 1/2 years post PBM with reconstruction

Started by Michelle Bryson in I need advice, have a question, can you help?. Last reply by Michelle Bryson Oct 6, 2019. 2 Replies

Hi All,I had a PBM with implant reconstruction (under muscle layer) and have had no problems at all up until now 2 and a half years later!!It started with a swollen feeling in both breasts and a slight increase in temperature. This lasted for a…Continue

Tags: nerve pain

Mastectomy - over 50

Started by Elizabeth Stone in Preventative Surgery. Last reply by Elizabeth Stone Sep 9, 2019. 12 Replies

Hello, I'm new here, I have a strong family history of Breast and Ovarian cancer and I am BRCA1positive. I have recently had a BSO and have an appointment to discuss a mastectomy. I was wondering if there are any other older women 50+ who are…Continue

PALB2

Started by Dotty in Waiting Room. Last reply by Dotty Jul 5, 2019. 1 Reply

so tomorrow we get the results of dad’s palb2 test. I can not find anything on here about PALB2 and wondered if anybody else has any experience?Previously, through genetics, I had been categorised as being high risk, due to significant family…Continue

Where are you??

Started by Caroline (Network Administrator) in New here? Why not introduce yourself... Last reply by Nicole Drapaniotis Jun 26, 2019. 105 Replies

I have set up a couple of Zee Maps which will make it easier for us to see where everyone is located and arrange some local support groups.For UK residents - Go to …Continue

 
 
 
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