BRCA Umbrella - The BRCA Gene and You

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Francine commented on Caroline (Network Administrator)'s group North Yorkshire Meet-Ups
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Julie Langley replied to Julie Langley's discussion Exercise post op
Wednesday
Robyn Morris replied to Julie Langley's discussion Exercise post op
Wednesday
Robyn Morris replied to LeslieB's discussion BPM with Tissue Expanders - photos in the group Reconstruction Photos
Wednesday
Gill Parish commented on Faye McCrory's group Bristol and South West Meet Up
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Tanja replied to Julie Langley's discussion Disclosing BRCA1
Nov 24
Tanja replied to Julie Langley's discussion Exercise post op
Nov 24
Tanja replied to Anna's discussion BRCA1 and BRCA2
Nov 24
LeslieB replied to Pav Wima's discussion numbness in the group Implant Group
Nov 22
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Pav Wima replied to Pav Wima's discussion numbness in the group Implant Group
Nov 22
Pav Wima replied to Pav Wima's discussion numbness in the group Implant Group
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LeslieB added a discussion to the group Reconstruction Photos
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Reconstruction Photos can be found HERE

A useful factfile full of abbreviations and jargon-busting definitions can be found HERE

Forum

Exercise post op

Started by Julie Langley in Preventative Surgery. Last reply by Julie Langley on Wednesday. 3 Replies

Good morning ladiesI'm 11 weeks post op following my PBM and had reconstruction with implants.How soon did any of you undertake excercise.?I've been walking and that's about it. due to see my consultant in 2 weeks and I know I still can't do upper…Continue

Disclosing BRCA1

Started by Julie Langley in Insurance. Last reply by Tanja Nov 24. 1 Reply

Hi ladiesHave read the previous posts but still a little confused.I have life insurance for a mortgage and have done for some years. I was diagnosed braca1 positive 2.5 years ago. I ve had both my ovaries removed and undergone pMBA 11 weeks ago. do…Continue

BRCA1 and BRCA2

Started by Anna in Preventative Surgery. Last reply by Tanja Nov 24. 1 Reply

HiI am BRCA1 positive and have had reconstructive surgery with implants and nipple sparring.I just wanted to know what is the difference in the BRCA1 and BRCA2 genes?I've been told at the Marsden that BRCA1 only affects the breasts and ovaries…Continue

Any advice on talking to young children?

Started by Louise in I need advice, have a question, can you help? Nov 17. 0 Replies

Hi Everyone,I am really just looking for some advise on tackling BRCA/ cancer conversations with my children, particularly my 8 year old son. I found out I was BRCA1 positive in September but since then both myself and my mum have my diagnosed with…Continue

Has anyone well into their 40s NOT had ovaries removed yet?

Started by Bel in Surveillance Screening or Surgery?. Last reply by Robyn Morris Nov 13. 4 Replies

Hello,I'm new to this forum: had Triple neg BC in 2002 aged 31, and only years later, after  I was in remission, found out I carry the BRCA1 mutation. I'm having my breast op in December. But, despite being in my mid 40s, I am still extremely…Continue

New to the group

Started by Lynne Carter in Preventative Surgery. Last reply by Robyn Morris Nov 9. 2 Replies

Hello all,My name is Lynne and I live in Devon.After two attacks of Breast Cancer, I was tested for the BRCA mutation gene.It was discovered that I carry the BRCA 2 breast cancer gene (the same as Angelina Jolie) but without her looks and money!As a…Continue

Bristol Meet up??

Started by Faye McCrory in Waiting Room. Last reply by Robyn Morris Nov 9. 4 Replies

Anybody in Bristol or the South West UK want to start a meet up group? Who is keen???

Trying to get tested

Started by Rachel in I need advice, have a question, can you help? Nov 8. 0 Replies

Hello, I'm new to the group and need a bit of advice. I was diagnosed with Stage 2 Grade 3 TNBC in May 2016 and had a mastectomy in June. Now nearly through chemo and will have radiotherapy after Christmas. Oncologist recommends genetic testing…Continue

Tags: testing

Where are you??

Started by Caroline (Network Administrator) in New here? Why not introduce yourself... Last reply by Faye McCrory Nov 4. 96 Replies

I have set up a couple of Zee Maps which will make it easier for us to see where everyone is located and arrange some local support groups.For UK residents - Go to …Continue

Anyone have a baby after surgery ?

Started by Jennifer r in Preventative Surgery. Last reply by Jennifer r Nov 3. 7 Replies

Hello looking to have a chat with someone that has had a baby after having a double mastectomy

 
 
 
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