BRCA Umbrella - The BRCA Gene and You


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Reconstruction Photos can be found HERE

A useful factfile full of abbreviations and jargon-busting definitions can be found HERE


Where to find the post-surgery bra?

Started by Irina in Preventative Surgery. Last reply by Lisa B Jan 23, 2022. 1 Reply

Hi all,I have delayed my double mastectomy+reconstruction for a number of years but I’m now ready. My surgery will take place in a couple of weeks’ time. I was wondering if someone could recommend a bra model/brand/store for the post-surgery period…Continue

Tags: Bra

Surgery on Monday!

Started by Kylie in Preventative Surgery. Last reply by Sarah Jun 15, 2021. 9 Replies

Morning all, hope you are all well. I’ve got my surgery on Monday and o have my ovaries and tubes removed. Feeling ok, but haven’t had any discussions about which HRT I will be on. I’m 36 and hoping they will send me home with something!

Implant issue - 10 years post op

Started by Sarah Kemble in I need advice, have a question, can you help? Apr 24, 2020. 0 Replies

I am 10 years post double mastectomy with saline expander implants following brca1 diagnosis (no cancer). Today I noticed my right implant has deflated. To late to ring the hospital, I am under the Royal Marsden. Any issues I should be concerned…Continue

10 years post op - implant exchange

Started by Danielle Stevens in I need advice, have a question, can you help? Jan 5, 2020. 0 Replies

Hi everyone, it’s been a very long time since I’ve been on here. I’m 10 years post op in April from bilateral LD Flap Reconstruction. At the time of surgery I was told that the implants would gave to be replaced after 10 years. A few years ago they…Continue

Surveillance after PBM and BSO

Started by susan mackenzie in Preventative Surgery. Last reply by Natalie Dec 10, 2019. 1 Reply

Dear ladies I am two years post PBM and 5 yrs post BSO, I see no drs for any surveillance and was wondering if this is the norm.Although I’ve had the preventative surgery the fear of getting something has not gone away and I’m sure I would find an…Continue

Fallopian tube removal only?

Started by Natalie in Preventative Surgery. Last reply by Natalie Dec 10, 2019. 4 Replies

Hi Everyone. I'm new to this group. I have a BRCA2 mutation and had a nipple sparing, direct implants surgery last year. I'm 37 and have the option now of participating in a trial to have my fallopian tubes ONLY removed. Has anyone else had this…Continue

how does mastectomy reduce risk?

Started by snow in Preventative Surgery. Last reply by Ellen Schubert Nov 21, 2019. 1 Reply

Hi everyone :)I'm sorry if this sounds very obvious I had a preventative mastectomy @ 33 years old and actually still don't understand how my risk has been reduced :/ Unless I'm understanding the whole process incorrectly ( which is I'm sure very…Continue

Post mastectomy lingerie

Started by Eleanor Howie in New here? Why not introduce yourself.. Nov 19, 2019. 0 Replies

Hi everyoneI am a long term member but first time poster. My name is Ellie and my sister and I have the BRCA1 gene. We both underwent double mastectomies with expander reconstructions when we were 24 (8 years ago for me). Both of us have really…Continue

Pain starting 2 1/2 years post PBM with reconstruction

Started by Michelle Bryson in I need advice, have a question, can you help?. Last reply by Michelle Bryson Oct 6, 2019. 2 Replies

Hi All,I had a PBM with implant reconstruction (under muscle layer) and have had no problems at all up until now 2 and a half years later!!It started with a swollen feeling in both breasts and a slight increase in temperature. This lasted for a…Continue

Tags: nerve pain

Mastectomy - over 50

Started by Elizabeth Stone in Preventative Surgery. Last reply by Elizabeth Stone Sep 9, 2019. 12 Replies

Hello, I'm new here, I have a strong family history of Breast and Ovarian cancer and I am BRCA1positive. I have recently had a BSO and have an appointment to discuss a mastectomy. I was wondering if there are any other older women 50+ who are…Continue

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